IHRA has been contracted by the Department of Health in Victoria to develop a suite of new resources. 20 of 27 resources have now been drafted for review, and we're looking for reviewers! If you have lived experience of an intersex variations, or your work contributes to the health and wellbeing of people with intersex variations, then we'd welcome your feedback!
The draft resources are on:
- 5α reductase 2 deficiency and 17β hydroxysteroid dehydrogenase 3 deficiency
- 45,X0 (Turner syndrome)
- 47,XXY (Klinefelter syndrome)
- Androgen insensitivity
- Congenital adrenal hyperplasia
- Gonadal dysgenesis
- Mosaicism involving sex chromosomes
- Disclosure and talking with peers (for youth)
- Disclosure at school (for youth)
- Disclosure (for parents and carers)
- Sex and sexuality (for people with variations)
- Talking with your doctor (for people with variations)
- Transitioning into adult services (for youth)
- What is peer support?
- What to do if you're asked to consent to a medical intervention (for parents and carers)
- Your rights at the doctor (for youth/people with variations)
- Your rights at the doctor (for parents and carers)
We're looking for feedback on any of these by 10 December. Additional resources remain in development, but if you see something that you need that is missing from this list then please let us know!
We particularly welcome feedback from people with lived experience, and areas of expertise including psychology, psychiatry, social work, paediatrics, general practice, endocrinology, genetic counselling, bioethics, health law, human rights law, peer support, or education.
Please contact us at email@example.com