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Summer 2016
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OPACC NEWS

OPACC invites you to be a part of our new campaign entitled “Faces of OPACC”!

While we have collected dozens of wonderful written testimonials throughout our 20+ years of supporting families, we thought that it would be even more impactful for the world to hear directly from - and put a face to - real childhood cancer families telling us their child's story and how OPACC has helped them during their childhood cancer journey.

All you need to do is click the “Share Your Story” button at the link below and record a short (3 minute max!) video right through your webcam or smartphone answering this question: “Tell us your child's story and how OPACC has helped your family in their childhood cancer journey.”

Perhaps you were helped in a meaningful way by our Parent Liaison at SickKids? Or we empowered you to start your own community parent support group? Maybe it’s as simple as finding useful information on our website or making connections on our social pages?

Any way that OPACC has helped you at any time - big or small, recently or years ago - we want to hear about it!

We will gather the video testimonials and share them throughout Childhood Cancer Awareness Month and beyond as an awareness and engagement tool for both childhood cancer and OPACC.

As an extra added incentive, everyone who submits a story will be entered into a random draw to win a family pack of Playdium Playcards worth 150 credits each to use at Playdium Mississauga (limit one entry per family; limited to immediate family members only living at the same address)!

We look forward to seeing and sharing your stories. Thank you!

View & Share Stories

September is Childhood Cancer Awareness Month.

Watch your emails and follow us on social media for special news and updates throughout the month!

Check out our updated "Helpful Links" page - now better organized and easier to navigate!

View links
THANK YOU


To all who attended our Annual General Meeting at SickKids on June 18th and to Dr. Maru Barrera for her presentation on the Psychosocial Assessment Tool (PAT)!

You can read the presentation and find out how to support the wide implementation of this tool on our webpage here.
 

To the Watkin family for their generous donation of detergent pods! OPACC provides pediatric oncology families at SickKids with free detergent pods to do their laundry while staying in-hospital. This is one more practical way that we seek to relieve an additional out-of-pocket expense for families.


To our special guest speakers Nathan and Hailey and to all the families that attended our Lunch & Learn session on long-term childhood cancer survivors at SickKids on July 14th!

If you have a suggestion for a future Lunch & Learn and/or would like to volunteer to be a guest speaker, please fill out the quick survey here.

 


To Million Dollar Smiles for inviting OPACC families to the annual Kids & Cops Fishing event in Caledon on July 19th!

To United Therapeutics (manufacturers of "Unituxin" antibody used in high-risk neuroblastoma protocol) for donating these workbooks to prepare neuroblastoma kids and families about to enter the antibody stage of therapy. Now available through our Parent Liaison at SickKids:

- "Introduction to High-Risk Neuroblastoma Diagnosis" booklet (unbranded)
- "Antibody Therapy" booklet (unbranded)
- Colouring/Activity booklet for patients/siblings (unbranded)

And thanks to OPACC parent Corinne E. for making the initial connection!


To Cancer Recovery Foundation of Canada for inviting OPACC families to the annual Teddy Bear Fair in Markham on August 6th!




To Starbucks Canada for their continuing support of OPACC by donating coffee, tea, and treats to our drop-ins, meetings and workshops, and community support groups!







To Dean Robev, Store Manager at Sobeys Todmorden (1015 Broadview Avenue, East York) for his ongoing commitment to providing donations of healthy snack options for our SickKids drop-ins!

And many thanks also to our volunteer Anna T. for making this happen.




To Childhood Cancer Canada Foundation for allowing us the continued use of their teleconference number for our meetings!

To Sarah Mueller at The Design Truth for donating her graphic design services!
OTHER NEWS OF INTEREST

The Cancer Knowledge Network is tackling the problem of pain in children with cancer through a social media campaign for parents called “Making Cancer Less Painful For Kids” (#KidsCancerPain). Over the next 12 months, they will be bringing parents the very best, cutting-edge research evidence about children’s cancer pain – what causes it, common myths, how to assess it, how to treat it, and more! They’ll be sharing this information with parents in a series of blogs, videos, images, Facebook posts, and Twitter chats, all posted and shared on their website and social media. Learn more here.

The Canadian Welding Association (CWA) Foundation has partnered with the Pediatric Oncology Group of Ontario (POGO) to provide funding for seven aspiring welding professionals. The $2,500 scholarships will be available to childhood cancer survivors, and their immediate family members, who are currently enrolled in a welding program at a participating Ontario college. Learn more here.

It has come to our attention that the Canadian Cancer Society family transportation log sheet is sometimes not easy to get a hold of, even though you need to fill it out in order to be reimbursed for transportation-related expenses through the CCS program. Click here for a PDF copy of the form. To learn more about the Canadian Cancer Society's programs for families of children with cancer (including how to get help with transportation to your child’s cancer-related care), click here.

Gold on the Hill childhood cancer awareness event on Parliament Hill (Ottawa) on September 17th. Learn more here.

The SuperSibs program has a variety of helpful, FREE online resources for parents and siblings of children with cancer.
FREE online Childhood Cancer Resource Library.
HOW OPACC HELPS YOU
 

OPACC's three pillars of support are:

I. In-hospital support through our Parent Liaison program

II. Community support through community-based parent support groups and training of new Facilitators

III. Leadership in Advocacy efforts to enable parents to advocate for themselves and to advocate on issues affecting childhood cancer families on a wider Provincial level, such as: E.I. legislation for benefits to Parents of Critically Ill Children, reduced hospital parking rates, representation for childhood cancer survivors, supporting the educational needs of children with cancer, childhood cancer awareness, and more!

 

OPACC is different because we support parents (and families) of children with cancer! While children with cancer deservedly have access to an impressive support network of healthcare professionals, friends and family, and charitable organizations focused on making them better and improving their quality of life, parents are often the "forgotten patient" and experience a high level of stress while juggling the demands of caring for their sick child as well as for the rest of the family and work. A diagnosis of childhood cancer is devastating in its impact to the entire family, as they experience fear, anxiety, post-traumatic stress, and frequently face financial hardships. OPACC believes in the value of providing parent support and that strong families start with strong parent support.

HOW YOU CAN HELP OPACC

OPACC is an independent registered charity; while we often partner with other organizations to provide services to our families, our programs are managed separately. Although closely integrated within the hospital through our Parent Liaison program, OPACC is an organization operating and funded separately from SickKids. OPACC receives no government funding and all funding for the development of our programs, services and special events (which are provided at no cost to our families) comes from the donations of generous organizations, businesses, foundations, and individuals. Below, please find some ways that you can give back to help us continue helping our families!

Find out how your donations can help and donate through CanadaHelps!
Order gift cards through FundScrip and a portion of the sales goes back to OPACC!
Get your school involved in a fun & easy Kaps4Kids awareness & fundraising event!
Shop for OPACC merchandise!
Direct your United Way workplace donations to OPACC!
BMO Customers: Round up your Mastercard purchases and donate the difference to OPACC!
Do you want your birthday to be even more meaningful? Celebrate your birthday by pledging it to OPACC in less than a minute!

Donate your Shoppers Optimum Points to OPACC for the purchase of items for our drop-ins and family support programs!

Did you know that you can launch a third-party fundraising campaign for OPACC in just minutes? Check out our website for some exciting ideas!
Corporate support can help us do more! Learn how businesses can help support OPACC in meaningful ways in return for generous donor recognition opportunities.
Volunteer!
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Copyright © 2016 Ontario Parents Advocating for Children with Cancer, All rights reserved.


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