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MERRY CHRISTMAS!

There is no doubt 2016 has been a tough year for some, but also ground breaking on the political front. Looking forward to 2017, and hopefully the much needed change that it brings with it.

Merry Christmas and Happy New Year to all! 
 

 

Senate Report- Update


The Final Report has been released and available for viewing. Senator Rachel Siewert of the Australian Greens Party (WA) outlined the report followed by powerful statements by Senator Lambie and Senator Moore highlighting the neglect and suffering of Australian Lyme patients.  One of the most exciting elements was the commitment to 'Patients First' - finally!

The next step in the Senate is for us as a community to stay calm, focused and determined to ensure the Report isn't buried.  We will work with supportive Senators to ensure the recommended steps are progressed.  In early 2017 we will communicate again with an action plan some of which will benefit from Lyme community participation and backing.  Thanking you in advance.

If you would like a printed copy of the report make contact with Jeanette Radcliffe the Committee Secretary- community.affairs.sen@aph.gov.au or call 02 6277 3515.
 

 

 

Patients Call for Action- Update


The LDAA Call to Action video published on November 29, has received 457 views on YouTube, help us do better!

You are able to subscribe to the LDAA YouTube channel here. This will notify you if any new videos are posted by LDAA.

 
2016 was a massive year! Events of the year- Professor Peter Irwin's research paper on pathogen hosting ticks, leading American expert Dr Richard Horowitz submission into the Senate Inquiry, the Senate Inquiry itself and of course all of the media attention across the year. Lyme disease and tick borne illness has been discussed on A Current Affair, SBS Insight, Triple J Hack, ABC News and Radio, The Sydney Morning Herald just to name a few! Whether this news has been positive or negative it is still raising attention and spreading the word. Most everyday Australians know about Lyme and are learning it's here and something to be cautious about.  That's a fantastic achievement over the past years.

Comments and reviews - the good, the bad and the ugly!
With the very common comments like "Lymes disease" and "good to see it in the Lyme Light" and the ever constant "Call it what you like, we don't care! Just help us!" popping up all over social media we thought we would collate some of 'the Good, the Bad and the Ugly' comments for your reading pleasure.
Hopefully you get a giggle or some inspiration too.

-"Absence of proof is not proof of absence"
-"The conspiracy theories in this article are bizarre"
-"So if a specialist sends the blood work to be tested in the US where they know what they're looking for, and the test comes back positive...why do doctors here refuse to acknowledge it?"
-"Common things are common. It sounds like depression/mental health problems."
-"This is not Lyme or Lyme like or tick borne disease..this is humpty dumpty syndrome...this is what I call it now. ...i feel I will never be put back together..".
-" I would like to propose we create a nude women's calendar with all proceeds going to the LDAA, and would like to appoint myself chief recruiter. Applications close December 31st." :-)

There has been so much media attention across 2016, we sincerely hope it continues! Keep commenting, liking and sharing the more spread on information we can get the better! 


GREAT idea for easy Christmas shopping!
Have any friends that LOVE a nice bottle of wine?  Wine Direct will donate to the LDAA for any case of wine purchased!  Easy peasy!

Still have shopping to do?
Use Shopnate with heaps of retailers to chose from it is easy and you can select LDAA as your chosen charity and donation will be made!

 

 

Are you planning a Lyme Awareness event in 2017?
Let LDAA help. Get in touch with us via our website, we can help you with marketing materials and advertising on our Facebook page.
 

 

Volunteer With Us

 
Join our wonderful volunteer team! LDAA works in a virtual environment. You must have access to a computer, a stable internet connection, and have a passion to enact change in your community! LDAA's roles are expanding, often volunteers take on ad-hoc jobs, beyond their initial involvement. 

Our current volunteer positions are:
  1. ADMIN Support | Passionate about our cause and love admin, organising, detail and being part of an amazing team?  We could use your help!
  2. Copywriter | A whiz with words?  Like making a difference? We need you!
  3. Marketing/Fundraising | Need a passionate individual to help Lyme patients, bright/innovative ideas a bonus! Must be able to implement and manage fundraising projects as part of a team. Twitter expertise a bonus!
  4. Events Coordinator | National coordinator of LDAA events, including supervising support groups, policies, maintaining and liaising with event holders, and team work with our fulfilment officer. 
Introduce yourself by sending us a message via our contact us form! We look forward to speaking with you!


 

From the Committee
 

As Christmas draws near, our hearts are always with our most vulnerable. We hope that Lyme disease is as kind as possible to you at this festive period and please, please, please - stay connected with someone and/or each other.  Special prayers to those lacking family and friend support. 

A huge THANK YOU to everyone that played a part in the Senate Inquiry into Lyme-like Illness.   This is a huge milestone for the Lyme community in Australia.

As we look forward to 2017 with confidence we see that the recognition of patients and their doctors will progress and that all of the required research and funding is triumphant. This is a starting point of a very long road, but it now seams that the finish line may be in reach.

Please know there will still be disappointments, there will still be people and letters denying Lyme in Australia, the strong 'no Lyme in Australia' camp will remain.  Please don't focus on them, and avoid allowing it to upset you.

The message remains that - a) Senate Report most positive step forward to date b) There are gaps, but we will continue to address them c) Even a Royal Commission would not budge the entrenched deniers, so let's not beat our heads against that wall... We can and will work with those that are open, who are interested in genuine science, have strong ethics and the science and evidence will shift their perspective.

Please keep the support levels high for our companion politicians, as they continue doing a marvellous job fighting this fight along side us. Senators Siewert, Moore and Lambie, and John Madigan will of course be receiving a heartfelt virtual hug for Christmas from all, I am sure!  

Merry Christmas and Happy Holidays to all!

Thanks again Lyme warriors!
Yours in Green, 

Sharon Whiteman | President

P.S. Remember to connect with us on Facebook & Twitter.  We appreciate your likes, comments, shares and re-tweets, it does make a difference!

  Join our volunteer
  team! 




 


 
Have an LDAA event, or want to include something in our next newsletter? Let us know about events here or other happenings here!

 
 
Copyright © 2016 Lyme Disease Association of Australia, All rights reserved.


Disclaimer:
The information in this email is not intended to be medical advice nor replace advice received from a Doctor or medical institution.


 
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