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Patients FIRST 2017.
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Australian Patients Invest in Research 

 

Lyme Disease Association of Australia (LDAA) was awarded a $35,000 grant from Country Women’s Association (CWA) NSW in 2016 to put towards research into tick borne illness in Australia. After considerable analysis of a variety of research proposals it was determined that the progress, method and credibility of the Murdoch University (MU) team made them a standout candidate. The Lyme Disease Association of Australia (LDAA) in conjunction with the Country Women's Association (CWA) of NSW are proud to announce funding for a new study into tick-borne illness.

Professors Peter Irwin and Una Ryan, co-directors of the VWBPG, said intense public and government concern about the potential for tick-borne disease in Australia has led to a now urgent need for new research using cutting edge, advanced DNA technology in order to properly inform the debate. 

“Over the last 30 years recognition of a 'Lyme-like' syndrome has emerged, the onset of which has been attributed to people bitten by native Australian ticks,” Professor Irwin said.   “There have been manifestations of an undiagnosed illness causing significant patient distress, with symptoms presenting in a similar fashion to tick-borne diseases overseas.” 

The LDAA are so proud to have contributed to this and want to thank all the ladies at the CWA of NSW for their amazing voluntary work for Lyme patients in Australia. Thank you so much CWA!  Please thank them here on facebook.

Fundraising for this study is ongoing with 100k needed.  Find out more about the research and how to take part.   LDAA media release Murdoch media release

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May Lyme Project 2017 welcomes 2 new partners!  


The LDAA is excited and grateful to announce that the Country Women's Association of Australia (CWAA) has chosen to partner with the LDAA for the 2017 May Lyme Project.   "Lyme disease is a real concern to our national membership and our full executive team endorsed the 'Bite of Lyme' campaign for change.  We are looking forward to combining our efforts with the LDAA to raise awareness and funds to improve outcomes for current and future Australian Lyme patients." said national president, Dorothy Coombe. 

Patients Want Change
We are also proud and excited to let you know that the LDAA will partner with the US-based, LymeDiseaseChallenge group.  Like us, they are grass-roots and patient-lead – a global partnership for real action both with and for Lyme patients.  We may have similar or the same or completely different 'bugs' but many of the challenges in regards to recognition, early diagnosis and effective treatment are identical.  It's time for change.

We have a small volunteer team ready to help patients, their families and communities make a difference in May.  It's SUPER simple, take a photo on your own, in a group or at an event, then share and donate – Give$10forLyme.  Use Hashtags: #BiteOfLymeAU #LymeDiseaseChallenge

Your participation can be large or small – fully customisable to 'Lyme-abilities'!  Full details coming soon.   Join us in the Lyme Action group on facebook or contact us!



 

 

Learn from Dr Dietrich Klinghardt  

 

Dr Dietrich Klinghardt MD, PhD has been practicing Medicine since 1975. He has been working in the US since 1982. He is founder of the Klinghardt Institute (UK) and Institute of Neurobiology (Germany). He is the head physician at the Sophia Health Institute in Seattle. He is internationally renowned for his effective biological solutions to complex chronic illness and his ground-breaking work with brain disorders, Lyme Disease and Autism.
Dr Klinghardt is running two seminars on Autonomic Response Testing (ART)and his renowned therapeutic solutions across a broad spectrum of conditions. 

June 2nd and 3rd - ART Seminar Over the course of the 2 day training in ART 1, you will learn how to accurately assess your patients/family/friends for the half of the above factors and devise a safe, appropriate and effect protocol to address these causal issues. The other factors are taught in ART II, the second level of training.  Book Here 

June 4th - This one-day seminar will offer biological non-invasive effective approaches for therapists and patients alike. This seminar will cover; Tick borne infection. Autism, Toxicity, Parasites, Biophysics, Electromagnetic Fields, Drug uptake enhancement, Finding the right dose and Materia Medica. Book Here

“In the fullness of time, the mainstream handling of Chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.” ~ Dr. Kenneth Liegner

Dr-K


 

Just about every Lyme patient has been at the point of asking themselves 'can I go on?'  There is hope of improved quality of life and even full recovery for most.  If you're feeling hopeless, please reach out to the support groups and call Lifeline (13 11 14) or other professional service.  You can get better.

Responding to community requests,  the LDAA newsflash will include a segment sharing stories of recovery, starting with our very first president of the LDAA, Nikki Coleman.  Nikki is still treating pro-actively, but has arisen from her motorised wheelchair to a full and busy, quality life.  Read her story, including a 2017 update.


 

Rotary Willeton Fair

Chrysalis is going to the Rotary Willeton Fair on the 2nd of April and will have dresses and lucky dips for sale and lots of Lyme Disease information to share with the community. There is a multitude of vendors and local groups attending the event to check it out click here. 
 

Car Boot Sale

Chrysalis is raising money for their next fantastic Ball. Car Boot Sale is on Sunday the 30th of April at 8am in the John Curtin College of the Arts Carpark entry is $10.

About Chrysalis

Chrysalis is a LDAA support group for people with chronic fatigue and/or Lyme disease in Perth WA; it is run by volunteers with a lived experience in Lyme disease and is a not for profit organisation.

Their main aim is to help support each other in an open, understanding and fun way and in doing so help reduce social isolation and suffering. They also strive to spread more awareness of the disease to the general public.  The LDAA is very grateful for all the hard work of Ailsa and her team.  For more information- click here.

Mould illness, otherwise known as Chronic Inflammatory Response Syndrome (CIRS), is threatening the health of more and more people every day. And yet, few people know how exposure may actually be making them sick! Dr. Sandeep Gupta took part in an interview with Functional Diagnostic Nutrition to discuss this important topic.

Quite a few Lyme sufferers find mould to be an issue and exacerbate symptoms. Mould is everywhere…and is particularly a problem in areas that see high amounts of rain. And although you can sometimes see it in your home or workplace, often times it goes unseen. And most people aren’t aware of a growing problem with toxic mould exposure and the resulting health issues that come from being exposed.

Find out more on Facebook, Dr Gupta's Website or Functional Diagnostic Nutrition Interview.

 

Want to TICK the Kokoda box?
Lyme Disease is a small TICK causing a big problem.

Want to help raise awareness and make a difference?  Join us as we trek across Kokoda on our 9 night trek in support of Lyme Disease from July 18-27 2017.  
To book this trek contact Kokoda Spirit enquiries@kokodaspirit.com,  www.kokodaspirit.com or via Facebook


 

 
Are you planning an awareness event?
Let the LDAA help!  Get in touch with us via our website, we can help you with marketing materials and advertising on our Facebook page. (we have a supportive event planning manual coming soon!)

 

Volunteer With Us

 

Join our wonderful volunteer team! LDAA works in a virtual environment. You must have access to a computer, a stable internet connection, and have a passion to enact change in your community! LDAA's roles are expanding, often volunteers take on ad-hoc jobs, beyond their initial involvement. 
 

Our current volunteer positions are:

  1. ADMIN Support | Passionate about our cause and love admin, organising, detail and being part of an amazing team?  We could use your help!
  2. Marketing/Fundraising | Need a passionate individual to help Lyme patients, bright/innovative ideas a bonus! Must be able to implement and manage fundraising projects as part of a team. Twitter expertise a bonus!
  3. Events Coordinator | National coordinator of LDAA events, including supervising support groups, policies, maintaining and liaising with event holders, and team work with our fulfilment officer. 
  4. Social Worker | While we'd need many full time social workers to assist our community's needs, we'd love to set up some systems which may help the many.  Can you help?
It's a positive team environment and we love collaborating to spearhead change for Australian Lyme patients.  Introduce yourself by sending us a message via our contact us form! We look forward to speaking with you!


 

From the Committee
 

We are continuing to seek an update in regards to the Department of Health and government action on the Senate Inquiry Final Report recommendations.   Make sure you let us know if you know first ;-).

The last few years have brought tumultuous times for the Lyme community – lots of hope coupled with despair and hopelessness...  so much so that we even lost one of our own who resorted to self-euthanasia to end her pain and hopelessness.  Our sincere condolences to Lisa's family.

A heartfelt thank you to the CWAA for their partnership for the May Lyme Project 2017 'Bite of Lyme' campaign.  You may not be aware that the Country Women’s Association of Australia (CWAA) is the largest women's organisation in Australia with 25,000 members across 1500 branches. It's aims are to improve the conditions for country women and children and to try to make life better for women and their families, especially those women living in rural and remote Australia. The organisation is self-funded, nonpartisan and nonsectarian.  They are passionate and committed to prioritise Australian Lyme disease on their list of health priorities for 2017.  If you're wanting to take action with us in May, make sure you reach out to your local CWA branch and see what you can create together!

The systems for the May Lyme Project 2017 are days away from completion.  It is a fully customisable campaign that anyone can do straight from their bed! (just have to get someone to buy you a lime :-) ).  Whether you can do a little or a lot, it all helps!    Recognition, treatment and prevention of Australian vector-borne diseases are 30 years overdue...  it's time for definitive government and medical fraternity action.

Thanks again Lyme warriors!
Yours in Green, 

Sharon Whiteman | President

P.S. Remember to connect with us on Facebook & Twitter.  We appreciate your likes, comments, shares and re-tweets, it does make a difference!

  Join our volunteer
  team! 




 


 
Have an LDAA event, or want to include something in our next newsletter? Let us know about events here or other happenings here!

 
 
Copyright © 2017 Lyme Disease Association of Australia, All rights reserved.


Disclaimer:
The information in this email is not intended to be medical advice nor replace advice received from a Doctor or medical institution.


 
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