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Dear Lymelighter,
 


Doctors Speak Out on Natural Medicine

Dr Richard Schloeffel OAM & the ACIIDS group of doctors have responded to Medical Board of Australia's Public Consultation.  In a progressive and extensive submission, they have outlined the facts, including exposing bias in definitions used by the Board.

"Complementary medicine, unconventional medicine and emerging treatments are disparate issues and should not be grouped together or covered under the one definition as proposed by the Board.

The areas of concern, "complementary and unconventional medicine and emerging treatments" are too diverse in nature to be considered together and too ill-defined to be practically meaningful. The lack of a clear definition of “complementary and unconventional medicine and emerging treatments” creates the risk of arbitrary interpretation on an ad hoc case by case basis that is a denial of natural justice and open for abuse.

The proposed new guidelines would reduce the ability of patients to have access to the medical treatment of their choice, increase costs, and of significant concern, potentially result in patients seeking treatment from unqualified practitioners or overseas clinics. This will reduce patient safety and increase risk to the public.

The MBA is threatening the existence of integrative health, disenfranchising millions of Australians who choose complementary medicine.   
Integrative medicine is scientific, as such the MBA's illogical and sustained condemnation of it will negatively influence consumer rights to health care choice in Australia.  Integrative health is world’s best practise and is the future of medicine."

Download the submission.  We encourage you to read and spread the word -  you may forward via email, social media, text and phone calls to your elected members.

Have you submitted to the consultation?  We encourage you to do so!  A simple response outlining the effectiveness and importance of natural medicine in your life and family would suffice (submissions close June 30th).


It’s back 👏👏👏 July 8th in Sydney

For a second time, the owner of Sydney's Nel Restaurant, Nelly Robinson, is partnering with some of the industry's most exciting young chefs to raise awareness for Lyme & funds for the Lyme Disease Association of Australia.

Inspired by his mate & fellow chef, Kirk Haworth's battle with Lyme, Nelly has put together another amazing evening with snacks on arrival & a six course tasting menu with matched wines.

Each chef has been tasked with the challenge of incorporating lime into their recipe 😃.

The evening ‪will start at 6.30pm‬ & will be led by Nel Robinson while Matt deGroot of Nova 96.9 fame will inspire guests as MC for the night.

For Tickets - email info@nelrestaurant.com.au & quote Lyme dinner.  Make sure you head to their FaceBook page and give them some love. 👍



Do you know anyone with a business or service that would offer a prize?
Thank you so very much to those of you who've already contributed!!

  • Caz Willis, @artofcaz – Handcrafted jewelry
  • Helen Duley – Framed artwork called "Two Blue Wrens - a Diptych"
  • Lynn Rees – Full permethrin clothing package
  • Vicki White – Wellness coaching package

If the prize or service needs local access, then it would need to be Sydney-based.  Historically there have been vouchers, artwork, free dinners, memberships and more.  The deadline for contributions is June 15th.

Let us know if you can help!

 

Super great news!!
We are excited to announce that ArminLabs have offered a special discount to Australians who are members of the Lyme Disease Association of Australia.  To become a member (it's free) and order your ArminLabs kit, simply:

  1. complete this form then
  2. choose "I'd like to order ArminLabs test kit(s)" from the dropdown list 

"ArminLabs is proud to partner with the Lyme Disease Association of Australia in bringing advanced vector borne disease testing to Australia in the most affordable and streamlined way possible.  We are delighted to announce discounted testing for Australian patients who are members of the LDAA." 
~ Markus Berger, Sales Manager, ArminLabs

 



2019 Raffle – Need a new car?


ONLY $2 TO HELP THE LDAA!!
An amazing chance to WIN 100's of GREAT PRIZES

The People’s Choice Community lottery is back!

Last year, thanks to the AMAZING support of the Lyme community we raised over $10,000 towards our fight for Lyme patients.   This year we are hoping 🙏🏻 to do the same.

Among the 100’s of prizes are 2 cars, a diamond ring & a $20,000 Harvey Norman house package and more!

What are you waiting for..........just $2 for your chance to win 😀

Online
Buy your tickets here, it's easy! 💚  Spread the word!

Paper tickets now ready to order!!  
Simply click and choose "I'd like to order raffle ticket booklets" from the dropdown list to order.

No photo description available.



Did you know that you can now raise funds for the LDAA directly through Facebook?

You can add fundraisers to posts or create one in lieu of birthday gifts......there are so many creative ways you can utilise Facebook fundraising.

All funds raised go to the nominated charity via their PayPal (giving) accounts. 😍

We already have 2 amazing peeps who have set up LDAA fundraisers on their profiles & we would like to take this opportunity to thank them so very much. 🙏🏻

It's SUPER easy, two ways to do it, 2-3 quick steps and you're on your way!
Watch Jen's quick video to learn how!

 


We would  like to encourage you to become a member of the LDAA if you’re not already.

It's easy and free and you simply fill in this form.  Members are eligible to vote in the elections of LDAA Board Members.
 
The LDAA works tirelessly in the pursuit of seven key areas:
  • Advocates for individuals and families living with Australian Lyme and associated diseases with governments, doctors, and local communities;
  • Facilitates world’s best practice patient care and support;
  • Represents the perspective, lived experience and interests of the Australian Lyme patient community;
  • Acts as a conduit between international developments, research, treatments, and other Lyme communities;
  • Fundraises to facilitate improvements for people living with Australian Lyme and associated diseases by supporting the education of doctors and other health professionals;
  • Fundraises to support research and innovation in epidemiology, diagnosis, and treatment of Australian Lyme and associated diseases;
  • Educates the public and medical sector about the risks of Lyme disease and the need for early diagnosis and treatment (early detection makes this an easily treatable disease).
Your support is invaluable in assisting us to achieve real change for current and future Lyme patients.


Community News & Events


Dr. Nicola Sydney Clinic
Dr. Nicola will be holding a clinic in Sydney on Monday July 15th and Tuesday July 16th, 2019. Appointments can be booked by emailing info@restormedicine.com, or online by going to www.restormedicine.com, click on Schedule a Consultation, then Schedule Online, then selecting “Dr. Nicola – Australia clinic” as the provider. Please contact us if you have any questions.

Chrysalis Support Group
Chrysalis meetings are held on every third Saturday of the month from 2-5pm at the
Cockburn Integrated Health meeting room 11, Wentworth Parade, Success, Western Australia (please NOTE change of venue). Contact Ailsa for more information  Facebook   Email

 

 

Volunteer with Us

 
Join our wonderful volunteer team! The LDAA works in a virtual environment and it's busier than ever!  You must have access to a computer, a stable internet connection, and have a passion to enact change in your community!  LDAA's roles are expanding; often volunteers contribute to ad-hoc projects beyond their initial involvement. 

Remember to reach out to your 'well' family and friends to invite them to support our cause!
 

Our vacant volunteer positions are:

  1. Fundraising Volunteer | This person will work with the Board in developing an annual fundraising calendar and giving programs. Experience with writing grant applications would be an asset.
  2. Media Volunteer | We need a passionate individual to work with communications and media engagement. This person would work directly with the Social Media Manager and CEO.
  3. IT Manager | WordPress maintenance with some database work (full position description available on request) - let us know if you're available!
  4. Writing Support | Love to write?  We are in need of support for blogs, grants and technical documents.  We work as a team and it's fun, inspiring and it feels so good to give back.
It's a positive team environment and we love collaborating to spearhead change for Australian Lyme patients. Introduce yourself by sending us a message via our contact us form!  We look forward to speaking with you!
 

From the Committee

 
It's been a month full of highs and lows.  First, thank you to everyone who took action during the recent election.  Whether you can see it or not, it does make a difference.  Also a big thank you to all who reached out to us disappointed that Labor's election promise of $2.8M towards an integrated research platform for early diagnosis & personalised treatment did not have a chance to be carried out.  While we understand everyone's deep disappointment and despair, please know that all is not lost.  We only lost one major supporter with the retirement of Senator Claire Moore but Jacqui Lambie is indicated as 'WON' on the ABC election results.  Welcome back Senator Lambie!   Please know we are in regular contact with Minister Hunt, he is listening and the initiatives he has already put in place are underway and of course we're asking to fill in the gaps of everything we need.  Our longstanding supportive Senators Reynolds and Siewert remain engaged, supportive and available to us.

We will continue to advocate for the integrated research platform as that's what Australian Lyme patients need and deserve.

Your help is needed!!  We'd like to make a special call out for support for our Community Choice Raffle.  It's super easy to buy online and/or order ticket booklets.  Your support means everything!

Finally, our sincere gratitude for the support and backing from Senator Claire Moore for many, many years.  She was persistent and dedicated to get us the support we deserve.  We wish you the most beautiful retirement.

'It takes a village' :-)
Yours in Green, 

Sharon Whiteman | CEO (Interim)
Lyme Disease Association of Australia

Disclaimer: Any content within this newsletter is not intended to be a substitute for professional medical advice, diagnosis, or treatment, nor as an endorsement from the Lyme Disease Association of Australia (LDAA).

    
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