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Issue September 2019
Dear Lymelighter,
 

Latest research from Eva Sapi 

Dr Eva Sapi of the University of New Haven has made a name for herself as one of the key players in the field of Lyme disease research. Her research over the past 10 years has offered much needed insight into Borrelia biofilm formation, and the susceptibility of different forms of Borrelia to antibiotics and herbal antimicrobials such as Stevia and Cat's Claw, amongst other findings. 

Last year Dr Sapi and her team published significant research that demonstrated the presence of a persistent Borrelia infection in patients with ongoing symptoms of Lyme disease. This research added to the growing evidence supporting the controversial theory that a chronic form of Lyme disease caused by a persistent Borrelia infection does in fact exist.

Now, just this month, Dr Sapi and her team have again added more evidence to support the theory with the publication of a new paper titled, 'The long-term persistence of Borrelia burgdorferi antigens and DNA in the tissues of a patient with Lyme disease'. This research reports finding both Borrelia spirochetes and biofilm in the tissues of a woman with a 16-year history of Lyme disease. It also provides evidence that this persistent infection had been the cause of chronic inflammation in the patient.

As evidence grows in this area of research hopefully it will bring a change to the way our medical authorities view the disease and patients will start to see real movement in the areas of diagnosis and treatment. 
 


Are you a lucky winner?!!  💚🍀🍀🍀💚

This years People's Choice Credit Union Community Lottery has been drawn and the winning ticket numbers have been published on the website. Let us know if you are a lucky winner?!

A big THANK YOU to everyone who helped raise funds for the Lyme Disease Association of Australia in the Community Lottery. It is with your support that we continue to fight for greater recognition and support for this devastating illness.

💚💚💚💚💚💚💚💚💚


All LDAA members are invited to vote for office bearers and Board members

The 2019 LDAA Board election will be held at the LDAA Annual General Meeting on Tuesday 12 November 2019 at 7.00pm AEDT.
 
The AGM and voting will run via an online format, details of which will be emailed to members on the day. Names of those nominated for the roles of office bearers and Board members will be emailed on Tuesday 29 October 2019. You can download the 2019 AGM agenda and proposed constitutional changes now.

We look forward to your participation.


New 8-Part Series - 'The Gut Solution'

90% of disease comes from the gut! 

Are your strange rashes, painful joints, constant headaches and brain fog getting worse...

Nicola Ducharme, Lyme naturopath and health guru, recommends this new 8-part documentary series called ‘The Gut Solution’ if you want to address your autoimmune problems, brain degeneration, arthritis, obesity, anxiety and depression.

A few thousand years ago Hippocrates said, “all disease begins in the gut, now researchers from the Imperial College of London proved that he was right.

You need to start with your GUT - It’s where it all begins!

Get the answers you need before the series is taken offline...​
Discover the simple ways to recover your health by watching this new 8-part documentary series called ‘The Gut Solution’ today.


Sharon lived on a property in the Sunshine Coast hinterland for many years. In tick season it wasn't unusual for her family to find 7-10 ticks on their pets daily.  Sadly, it also meant that they had regular tick bites as well.  After a bite on the inside of her right upper arm, Sharon quickly descended into flu symptoms and a bull’s eye rash appeared within hours.  She had this dreadful feeling of doom and thought “I've never felt like this after a tick bite before”.  A quick internet search found an entomology site which indicated that a bull’s eye rash following a tick bite was rarely fatal, so she simply increased her immune support products and didn't think of it again.

Tragically, it took three years for her to connect that tick bite with her rapid decline into disability.  The first symptoms were fatigue, elevated liver enzymes and a 25kg weight gain in 2 years.  She saw 17 different doctors, was yelled at, experienced sarcasm, and was even kicked out of one office.  Sharon was offered multiple diagnoses, including CFS, Sarcoidosis, depression, Fatty Liver Disease and Lupus, but with a former career as a Clinical Nurse Specialist in Critical Care she knew something didn't fit.  A chance meeting with a doctor visiting from the US saw Sharon sending her blood overseas for testing, returning in December 2006 with a high positive for Borrelia burgdorferi via PCR.  Getting the diagnosis didn't help though, as she couldn't find a doctor to treat her.

By 2007 she could no longer walk unaided or drive, could only sometimes remember the names of her family, lived in 24/7 extreme pain and with a host of other symptoms.  With a very low and decreasing quality of life, Sharon was concerned about being such a burden on her family; and her family was worried about her. Her mother-in-law went online and found an alternative treatment which was reported to cross the blood-brain barrier.  With nothing to lose, she tried it, and over the next 18 months recovered about 70% to being functional.  Her deficits in energy, memory and high executive cognitive function remained however, and she could no longer fully function in her career of choice.

Sharon has always been outraged by injustice, and after meeting other Lyme patients in the Yahoo online support groups, she joined four others to develop a committee to take action.  For family reasons Sharon had to stand back for a few years but then started again with the LDAA in 2010, managing the Facebook page, then the emails, and finally joined the executive team.  Sharon says "Beyond integrity, one of my highest values is contribution; I'm much happier when I am able to contribute. I've always been a high achiever and being faced with such an invisible disability was difficult for me.  Even though there have been huge highs and some very low lows, it's made a huge difference to my quality of life to be able to contribute to our community in partnership with the greater team."    As we all know, for evil to prosper good people have looked away.


 
Read more about what's happening... 
 

Did you know that you can now raise funds for the LDAA directly through Facebook?

You can add fundraisers to posts or create one in lieu of birthday gifts......there are so many creative ways you can utilise Facebook fundraising.

All funds raised go to the nominated charity via their PayPal (giving) accounts. 😍

We already have 2 amazing peeps who have set up LDAA fundraisers on their profiles & we would like to take this opportunity to thank them so very much. 🙏🏻

It's SUPER easy! There are two ways to do it, 2-3 quick steps and you're on your way!
Watch Jen's quick video to learn how!

 


We would  like to encourage you to become a member of the LDAA if you’re not already.

It's easy and free and you simply fill in this form.  Members are eligible to vote in the elections of LDAA Board Members.
 
The LDAA works tirelessly in the pursuit of seven key areas, LDAA:
  • Advocates for individuals and families living with Australian Lyme and associated diseases with governments, doctors, and local communities;
  • Facilitates world’s best practice patient care and support;
  • Represents the perspective, lived experience and interests of the Australian Lyme patient community;
  • Acts as a conduit between international developments, research, treatments, and other Lyme communities;
  • Fundraises to facilitate improvements for people living with Australian Lyme and associated diseases by supporting the education of doctors and other health professionals;
  • Fundraises to support research and innovation in epidemiology, diagnosis, and treatment of Australian Lyme and associated diseases;
  • Educates the public and medical sector about the risks of Lyme disease and the need for early diagnosis and treatment (early detection makes this an easily treatable disease).
Your support is invaluable in assisting us to achieve real change for current and future Lyme patients.


Community Noticeboard

FREE Workshop, Sunshine Coast QLD
Introduction to Quantum Healing Hypnosis Technique is an experiential seminar where Peter Rule (Naturopath, Herbalist, Nutritionist, Hypnotherapist & Wellness Coach) will give a brief description of this type of hypnosis which was developed by regression hypnosis pioneer Dolores Cannon USA.

Come along to our FREE ‘Wellness Wednesday’ Information night, where Peter Rule will guide you on an experiential journey to connect more with the right side of brain, explore past lives, future lives and connect with your guardian.

  • When: 6.15pm arrival for a 6.30pm start, Wednesday 30 October 2019
  • Where: Noosa Holistic Health, 35 Mary St Noosaville QLD
  • Cost: FREE
  • What to bring: Something comfortable to lie on (ie: yoga mat, blanket) and a notebook and pen
  • More Information. Bookings are essential, phone: 07 5449 7088 to secure your spot!

Lyme Like Illness Information Session, Merewether (Newcastle NSW)

There is a growing number of Australian who have become sick following a tick bite. Lyme like illness is very real and debilitating condition; symptoms can range from nausea, weight loss and fatigue to tingling and anxiety.
Cody Kennedy Naturopath has treated many clients with tick borne illness.

Wed., 20 November 2019
6:30 pm – 8:00 pm AEDT
CK Health, 136 Glebe Road, Merewether, NSW 2291

Chrysalis Support Group
Chrysalis meetings are held on every third Saturday of the month from 2-5pm at the Cockburn Integrated Health meeting room 11, Wentworth Parade, Success, Western Australia (please NOTE change of venue). Contact Ailsa for more information
Facebook   Email


 

 

Volunteer with Us

 
Join our wonderful volunteer team! The LDAA works in a virtual environment and it's busier than ever!  You must have access to a computer, a stable internet connection, and have a passion to enact change in your community!  LDAA's roles are expanding; often volunteers contribute to ad-hoc projects beyond their initial involvement. 

Remember to reach out to your 'well' family and friends to invite them to support our cause!
 

Our vacant volunteer positions are:

  1. Fundraising & Marketing Volunteer | This person will work with the Board in developing an annual fundraising calendar and giving programs. Experience with writing grant applications would be an asset.
  2. Media Volunteer | We need a passionate individual to work with communications and media engagement. This person would work directly with the Social Media Manager and CEO.
  3. Writing Support | Love to write?  We are in need of support for blogs, grants and technical documents.  We work as a team and it's fun, inspiring and it feels so good to give back.
  4. Counselling Support | Do you have the lived experience of Lyme and want to help others?  Let us know!
It's a positive team environment and we love collaborating to spearhead change for Australian Lyme patients. Introduce yourself by sending us a message via our contact us form!  We look forward to speaking with you!
 

From the Board


Patients First.  Thank you to Senators Siewert and Lambie for their continued action on behalf of patients both behind the scenes and through their questions in Senate Estimates (pg 140-142) last week.  Not enough action has been taken in response to the Senate Inquiry Recommendations and together we will continue to lobby for real action that helps patients and their doctors.  We encourage you to continue to reach out to your MPs and Senators, tell your story, ask for action and if they're open to it, ask for a time for us to brief them.  Let us know how we can help!

As the AGM draws near and we reach the final fortnight with the current executive and Board team I'd like to honour them, their contributions and their steady commitment.  They sacrifice to put the collective needs of those we serve ahead of their own and rebound after disappointments and setbacks to be stronger together.  If you'd like to further support the cause for all Australians impacted by Lyme and associated diseases, reach out today.

'It takes a village' :-)
Yours in Green, 

Sharon Whiteman | CEO
Lyme Disease Association of Australia
 
Disclaimer: Any content within this newsletter is not intended to be a substitute for professional medical advice, diagnosis, or treatment, nor as an endorsement from the Lyme Disease Association of Australia (LDAA).

    
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