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NEW evidence of Lyme disease from 1992
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Dear Lymelighter,
 

LDAA Supplementary Senate Submission published

Just released!   As Australian Lyme disease patients continue to fight for their basic rights, the Lyme Disease Association offers more information to help our government and medical colleges 'make it right'.   The LDAA successfully applied for the opportunity to provide additional information to our first submission.   LDAA submission.

NO MORE Australians should suffer, die or contract new cases of Australian Lyme without being afforded world class medical care. Thank you to all involved in continuing to represent and support sick Australians, it truly takes a village!
 
 

NEW Evidence of Lyme disease from 1992 [watch]

The LDAA are fortunate to have been provided with this video and further supporting evidence of 1992 research.

"We knew we had a break through as recently as about a week ago [1992] when we discovered that the microbe that we have been characterising is actually structurally very similar if not identical to the 'classical Lyme' disease [Borrelia burgdorferi] causing agent".
~ Dr Michelle Wills PhD

In 1992 ABC's The 7.30 Report aired a story highlighting how scientist Michelle Wills with little funding and tentative support discovered Borrelia sp. in Australian ticks.  

The Department of Health’s specialist medical adviser, Dr Gary Lum, has continually argued that there is NO EVIDENCE of 'classical Lyme' ever being found in Australia. As a result nothing has been done to help the thousands of Australians that have become sick after tick bites.

Michelle's discovery of Borrelia was confirmed by US Professor of Microbiology & Molecular Genetics, Alan Barbour who had worked with Wihelm Burgdorfer who discovered Lyme disease.

So... WHY wasn't this research from the 90's ever followed up? 

Amy's Run for the LDAA
 

This weekend will host a huge, fun run for the LDAA - lots of celebrities and fun with VIC's 88.3 Southern FM radio

Inspired by Amy O'Sullivan, Radio Trio Laura Henshaw, Jay Bruno and Luke Forrest are running 100kms!! from Blairgowrie to The Saint Hotel in St Kilda to raise money for Lyme Disease Research!!

The run will be followed by a live show including Guests Matthew Lloyd, Mav Weller, Alexandra Nation from the Bachelor, Max Gawn, Scotty McGregor from Neighbours and Comedian Elliot Loney!! The live show will go from 4-7pm and we invite you exclusively to come along and enjoy the fun!!! The first hours drinks are on us and Mav and Maxy will be having a crack on the coffee machine all proceeds go to charity so would love to see you there!!!  More details on facebook.

Lyme in the Media
 

Weekend Sunrise
HUGE thank you for one of the best media segments to date.  

"That's absolute BULLSHIT" stated Senator Jacqui Lambie on the disgraceful treatment of patients inflicted by tick-borne illness in Australia.

All parties agree that Australian ticks can make you sick but the medical profession are saying "it's not their problem, it's something for researchers to sort out" said Chris Walker, Acting CEO of Karl McManus Foundation.

SBS Insight
Special thank you to the Lyme patients who were featured on the SBS Insight program this month. They did us proud in the face of incredible adversity and bias.   Jesse Chadwick a patient whose story was being told challenged this complacency by asking ‘if I die on your watch, is that doing no harm?’ "

Special mention to pathology pioneer, Jennie Burke, from Australian Biologics.  The LDAA's opinion is Jennie should have had the 'right of reply' on the night but you can read it here.  The doctors in the audience were quick to avoid the ethical and legal responsibility for treating patients with the treatments that actually work overseas, by claiming that first they must do no harm.  See the LDAA full response here.

Please jump over to Jennie's Australian Biologics facebook page to like the page, say hi and thank you!
 

Just in time for Christmas shopping!!!  Would you like to give more to support Lyme awareness without spending any extra money? Good news!  The LDAA is now connected to Shopnate.

We have signed up to use the Lyme disease association of Australia Easy Fundraiser Google Chrome App. It allows a shopper to:

1. SHOP - at over 800 online retailers (eg Surfstitch, Expedia, Amaysim, Dan Murphy's, Petstock, Priceline, Woolworths, The Athelete's Foot, AVIS)

2. SAVE - online retailers provide COUPONS & other DEALS so you can save (great for x-mas etc)!

3. RAISE - online retailers will pay Lyme disease association of Australia a donation from their marketing budget on every sale - at absolutely no extra cost to you!

We would love you to install it so you can save while shopping online and help us raise funds - all at the same time.

shopnate pinker banner

Your support will assist LDAA in patient support, research, and awareness of tick borne diseases in Australia . Get the Lyme disease association of Australia Easy Fundraiser here.



Don't Know What to Do With Your Ticks?


We get many inquiries about people with ticks - how to preserve them, how to test them, where to send them!  Here's a quick list, current as of October 2016:

1) AGRIBO LAB, VICTORIA
This lab is working on a tick distribution map, and particularly any interesting findings - for example if they find a tick known to infect echidnas on a person, or a tick known to infect cats on a wombat. 
This will assist us in identifiying the spread of ticks and exactly what certain species of tick are attracted to biting. Hopefully this will lead to evidence that disputes the current logic that "xyz tick that is full of bacteria doesnt bite humans so therefore cannot infect them"
They do not test the ticks for what they are carrying but there work is still of benefit to the Lyme community.  You will be provided with answers as to the types of ticks you send in.  Click to download collection, transport and storage instructions

2) SYDNEY UNIVERSITY
Sydney unviersity are collecting ticks with the view to test them for bacteria.  You may or may not be provided with details about the results.
Click to download collection, transport and storage instructions 1
Click to download collection, transport and storage instructions 2

3) AUSTRALIAN BIOLOGICS
This lab will test ticks for Borellia bacteria (not co infections) at a cost to you.  For instructions on storage and transport and costs contact them directly www.australianbiologics.com.au
If samples are strong enough, they may also offer further testing through the genome lab to identifiy the species via DNA testing again at a cost.  You will be provided with full details of the results.

Just for the record, Murdoch University projects are ongoing, however they are not accepting tick samples at this time, as they have enough to work with. 
 

 

 

Nel's Restaurant Fundraiser



Pictured are Chefs Nelly and Kirk and LDAA representatives Marie and Lisa

The October 10th dinner was a huge success with Chef Nelly and his staff at Nel Restaurant cooking up a ‘lime’ inspired seven course meal, to help raise awareness and fundraise for Lyme disease.  Chef Nelly Robinson was inspired to help Lyme awareness because of the journey of close friend and chef, Kirk Haworth, who contracted Lyme in Australia while on visit from the UK.  Kirk has been unable to work due to Lyme - we wish him all the best in his recovery.

The funds raised will help the LDAA continue its vital role of assisting people affected by Lyme disease/Lyme-like illness in Australia. We’re truly thankful to have such wonderful support.

 

Volunteer With Us

 
Join our wonderful volunteer team! LDAA works in a virtual environment. You must have access to a computer, a stable internet connection, and have a passion to enact change in your community! LDAA's roles are expanding, often volunteers take on ad-hoc jobs, beyond their initial involvement. 

Our current volunteer positions are:
  1. ADMIN Support | Passionate about our cause and love admin, organising, detail and being part of an amazing team?  We could use your help!
  2. Marketing/Fundraising | Need a passionate individual to help Lyme patients, bright/innovative ideas a bonus! Must be able to implement and manage fundraising projects as part of a team. Twitter expertise a bonus!
  3. Events Coordinator | National coordinator of LDAA events, including supervising support groups, policies, maintaining and liaising with event holders, and team work with our fulfilment officer. 
We are currently very short of volunteer staff, particularly regular admin help.  Remember, 'health always comes first' and we are aware that many of you while willing, are just too unwell.  Random thought!  What about your able-bodied (and mind) friends and family?  They have a real reason to be passionate about the cause.  Let us know and we can have a chat!

Introduce yourself by sending us a message via our contact us form! We look forward to speaking with you!


 

From the Committee
 

Busy, Busy, Busy time.  You can see from the number of points this is a 2 in 1 Newsflash :-).  Thankfully we now have a new 'Newsflash' volunteer, so we should get back on track monthly.  #VolunteersRock!

We plan to continue to push hard right through until the Senate Inquiry Final Report due to be tabled in the Senate on Wednesday afternoon, November 30th.  We'll announce an approximate time on our facebook page on the day and you can watch here.  

Please head to their facebook pages to join us in thanking former Senators John Madigan and Dio Wang and current Senators Rachel Siewert, Linda Reynolds, Claire Moore and Jacqui Lambie for their care, support and expertise.

Thanks again Lyme warriors!
Yours in Green, 

Sharon Whiteman | President

P.S. Remember to connect with us on Facebook & Twitter.  We appreciate your likes, comments, shares and re-tweets, it does make a difference!

  Join our volunteer
  team! 




 


 
Have an LDAA event, or want to include something in our next newsletter? Let us know about events here or other happenings here!

 
 
Copyright © 2016 Lyme Disease Association of Australia, All rights reserved.


Disclaimer:
The information in this email is not intended to be medical advice nor replace advice received from a Doctor or medical institution.


 
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