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Greetings to Our Partners in Care!

Welcome to this month's edition of GriefPerspectives!


I dearly hope this weather has been the blessing to you that it has been to me. The warmth of the sun is bringing me hope and turning our eyes to the future and our upcoming events! Please take a look at our Local News section to see what we have coming up virtually & join us. 

Please know that now more than ever I am here as a resource for you and the many families we are collectively caring for across our county. It's times like these where I'm reminded of the phrase, "We can do hard things" - we know this to be true because we are doing them everyday. 

Thank you for all you are doing - your work matters!


Your partner & resource,

Becky Lomaka, MA, CT
Director of Grief Support & Education
blomaka@oconnormortuary.com
(949) 581-4300 ext. 229

 
GriefPerspectives
 

Bereavement Care: It's Not About the Content
by William G. Hoy

With somewhat concerned attention, I have born witness to the “explosion” of online grief support programs and apps that have made their debut in recent years. Just a few days ago, I received a note from a colleague in funeral service telling me of another “app” for grieving people his firm was invited to purchase as a major cornerstone in its “aftercare program.” Undoubtedly, some of these are designed to provide great support and I don’t doubt they could prove important as an adjunct to good bereavement work. Nevertheless, I have both my doubts and my fears about these programs and I will tell you a bit more about my misgivings and what I think we can do about these concerns.

 

  

Online or video-based bereavement support is nothing new. There have been video series on grief available since the days of the Betamax and VHS tape (ok, readers under 30 will have to ask an older colleague to explain!) and truth be told, probably from the days of actual reel-to-reel audio and film recording. With the inexpensive reproduction available with CDs and DVDs organizations with even very limited budgets found the series more affordable. Now that YouTube and other online video platforms have become ubiquitous in the market, it seems everyone is recording 10-minute “snippets” of advice for bereaved people; I have even recorded a few for professional colleagues myself, though I have personally chosen to stay away from the “direct-to-griever” market.
 
Faith communities were the first place I saw these recorded programs rolled out as pre-packaged bereavement programs and I have met countless volunteers across North America who tirelessly lead these seven, ten, and thirteen-week groups in their congregations. The production value is often “slick” and the personal stories shared by grieving people are often quite compelling. In some of the series, viewers are treated to rather “triumphalist” stories that model a life after grief as individuals report how their faith, or their desire to “not wallow in grief,” or their renewed purpose, or their dogged determination got them through the throes of loss. Frequently these stories are accompanied by the admonitions of self-described “experts” who offer that this strategy or that plan has a helpful place in healthy grieving.

This might all be well and good. Or, this could be harmful. The greatest harm, in my estimation, is the belief that seems implicit in many of these videos—and now online programs and apps—that the journey through grief is primarily mediated through correct information. Now certainly, sometimes the information offered in these programs is blatantly wrong. For example, leading bereavement clinicians and scholars have not used stage models to talk about the bereavement process in more years than I can remember but some of these online programs actually still talk about Kubler-Ross’ five stages as if it was this morning’s news. This is not only wrong; it is potentially harmful to bereaved people in ways that are well articulated in a recent paper in Omega by Margaret Stroebe, Henk Schut, and Kathryn Boerner, leading voices in bereavement today (Stroebe, et.al., 2017).
 
A couple with whom I was working through the dying of their toddler and the grief that followed happened upon one of just such programs that came in a pre-packaged “system” via the funeral home that had served them. The dad, who had learned quite a lot about grief during the two-year illness of their child, literally “hit the ceiling” at the misinformation provided; I reviewed the piece in question and had to conclude the dad was right in his assessment. He had already communicated with the funeral firm’s owners his aghast sense that they were providing such blatantly wrong information and the funeral home eventually cancelled the contract with the online provider in question. The information was, at best, misleading, and at many turns, completely opposite of what we understand to be true about bereavement today.
 
Researchers in Australia have been engaged for several years in a study to better understand the role of social support for bereaved individuals in a community based sample. In their most recent publication, this team reported that social support from one’s own network and from created networks such as bereavement support groups was useful, dividing the kinds of support into four types: instrumental, emotional, informational, and appraisal support, though informational support received was of mixed helpfulness (Aoun, et.al., 2018). Help with practical tasks (instrumental support), non-judgmental listening presence (emotional support), and ability to compare stories with other similarly bereaved persons (appraisal support) were generally regarded as helpful by these respondents. The results of this study might help explain the observation I made a few years ago (Hoy, 2016) that bereavement groups should be mostly about directed sharing of stories, perhaps punctuated by brief presentations (2-5 minutes) about content. In other words, the best bereavement support does not seem to be about the content but rather about the mutual support.
 
In a culture with widespread misunderstanding about grief, certainly some informational support is helpful. Brief informational pamphlets, for example, were named by respondents in the Aon, et.al (2018) study as useful for helping them understand better what to expect. My experience is these must be simple, straightforward presentations of content that do not “unload” too much information at one sitting. A single page or a tri-fold layout seems preferable to multi-page booklets and longer books. Readers can find links to just some of these materials in the resource section below.
 
Though based only on my own anecdote, of course, and lacking the empirical rigor of some of the studies on bereavement support referenced here, I have noted for years that bereaved people tend to be complimentary of brief materials I have written while caregiving colleagues tend to be more complimentary of my books and longer documents. In other words, we professionals seem to prefer wordy detail and bereaved individuals might seem to prefer materials that quickly “get to the point.”
 
One dilemma with video-based programming for bereavement groups is that it provides so much content that significantly distressed persons cannot simply take it in. Therapists have observed this in our own practices: rarely can a patient/client hear a presentation of facts or concepts that runs for several minutes or that include several points or sub-points; the amount of data is simply overwhelming. Rather, bereavement group leaders would do well to make an opening statement of a few sentences, drop in a sentence of two stated as principles as they emerge in the dialogue of a group meeting, and then offer a summary statement at the end.
 
 
In the context of these and other findings as well as a mountain of clinical experience shared among caregiving professionals and volunteers, bereavement support is not “rocket science.”
 
References.
 
Aoun, S.M., Breen, L.J., Rumbold, B., Christian, K.M., Same, A., & Abel, J. (2018). Matching response to need: What makes social networks fit for providing bereavement support? PLoS ONE 14(3): e0213367. doi: 10.1371/journal. pone.0213367
 
Hoy, W.G. (2016). Bereavement groups and the role of social support: Integrating theory, research, and practice. New York, NY: Routledge.
 
Stroebe, M., Schut, H., & Boerner, K. (2017). Cautioning health-care professionals: Bereaved persons are misguided through the stages of grief. Omega: Journal of Death & Dying, 74(4), 455-473. doi: 10.1177/0030222817691870

 



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The Author: For more than 35 years, William G. Hoy has been counseling with the bereaved, supporting the dying and their families, and teaching colleagues how to provide effective care. After a career in congregation, hospice, and educational resource practice, he now holds a full-time teaching appointment as Clinical Professor and Associate Director of the Medical Humanities Program at Baylor University in Waco, Texas where he has taught since 2012.
Our Events Calendar
 Reiki + Peace with Grief Circle

Give yourself this treat at the end of the week to start your weekend refreshed and relaxed.

Join Reiki Master and event host, Kathy Brook-Wong, and Becky Lomaka, MA, CT Director of Grief Support and Education at O’Connor Mortuary in our Zoom circle on March 7th at 3:00pm PT.
 
During this online Reiki + Peace with Grief Circle, Becky will share how grief is a universal human experience that does not require closure. Together we will explore ways to lean into grief, connecting ourselves to all of our feelings, discovering where we feel our grief in our bodies and how to practice positive self-care. Kathy will share about Reiki and how to use it to deepen your connection with Universal Life Force Energy. A distance Reiki healing will be gifted during our time together.
                                                            
Advanced Registration is Required:
Click here to register.
 
After registering, you will receive a confirmation email containing information about joining us on Zoom.
Resource Review
Ask Dr. Neimeyer - a weekly Q&A with an Expert
 
Each week Dr. Robert Neimeyer, a distinguished psychology professor and expert in the field of thanatology, releases a blog post in which he answers a question he’s received from a grieving person. His responses eloquently blend compassion statements with researched methods of helpful ways for bereaved persons to make movements in their grief. Often tackling taboo or complex situations, Dr. Neimeyer’s posts offer a weekly exposure to the hushed realities of grief and the ways we can navigate those mysterious places.
Your Professional Library

Bereavement Groups and the Role of Social Support
Hoy, W.G. (2016). Bereavement groups and the role of social support: Integrating theory, research, and practice. New York, NY: Routledge.
 
Reviewed by Molly A. Keating, MA, CT
Editor, GriefPerspectives
 
Filled with clinical experiences, stories, best practices and danger zones, Bereavement Groups and the Role of Social Support was published in 2016. Here, the new or veteran support group leader will find resources that are up-to-date and practical. The book combines the three most important aspects to consider when creating a successful support group: theory, research, and practice. 
 
Undergirded by interviews with both professional and lay support group leaders from around the world, this volume offers proven strategies for selecting a site, choosing a group style or focus, and reaching out to potential group participants. With humor and candor, the book introduces the “state of the art” in bereavement support based on the latest research findings from throughout the bereavement caregiving world.
 
Chapter topics move through the fundamentals of understanding grief and the need for social support, making use of Hoy’s compass model with which many readers are familiar. He discusses the importance of recruiting the right people to lead these groups and how to set up content for your sessions. Complex dynamics can arise in any support group; the book covers the issues most commonly encountered as well as detail out the unique ways children and teens experience support. The concluding chapter discusses dealing with complicated grief within the support group and the unique challenges that a complex griever presents.
 
Undoubtedly, this volume provides a compelling addition to the support group community and a guide to help strengthen the leader in the choices and directions he or she take a group.

Research that Matters
Wortmann, J. H., & Park, C. L. (2008). Religion and spirituality in adjustment following bereavement: An integrative review. Death Studies, 32(8), 703-736. doi:10.1080/07481180802289507
 
At the time this article was published in 2008, the authors noted that the notion of the helpfulness of spirituality in bereavement had been assumed but not always verified in research. They undertook an analysis of 73 empirical articles examining religion/spirituality in the context of bereavement. The authors describe the multidimensional nature of religion/spirituality and then utilize that framework to analyze the findings in the studies. What they found was that overall, the results are generally positive between religion and adjustment to bereavement but that there are widely varied ways of measuring religious constructs.

These kinds of studies provide direction for assessment and interaction with bereaved individuals but they rarely provide much help with specific interventions. Members of the Association for Death Education & Counseling can read all articles in Death Studies as a free member benefit at www.adec.org.
GriefPerspectives is published monthly by Grief Connect, Inc. Copyright ©2021. All rights reserved, including publication or distribution in any form, electronic or printed. For reprint permissions or suggestions for content, please email us at GriefResources@msn.com.
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