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Welcome to the June 2019 NAI E-Update & Member News

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Below shows the highlights and the the impact of Brain Awareness Week 2019 and we hope it encourages new partners to come on board. We are already working on plans for Brain Awareness Week 2020 (March 16th to 20th) and we will announce plans in early Autumn. 





NAI To Mark 'World Brain Day' July 22nd 2019
 
NAI are organising an event on July 22nd to mark World Brain Day in collaboration with the European Federation for Neurological Associations (EFNA). The event will see the launch of the NAI pre budget submission and details will be circulated to all member organisations in the coming weeks.
 


 

Date For Your Diary: Friday July 19th
Neurology Programme Presentation for NAI Member Groups

Professor Orla Hardiman, Clinical Lead for the Neurology Programme and Dervla Kenny, Programme Manager, will give a presentation and Q & A session to NAI members to present plans for the Neurology Clinical Programme and address any questions or concerns. This event will be held on Friday 19th July and full details will be communicated shortly to all NAI members.

 
NAI Pre Budget Submission
 
Thank you for your feedback and comments in relation to the NAI pre budget submission, which will be available shortly on our website.




 Joint Oireachtas Committee On Health
 
NAI accompani NAI presented to the Joint Oireachtas Committee on Health on May 8th, bringing forward a series of solutions to the challenges faced by people with neurological conditions, as agreed in advance with the Chair of the Committee. You can download the NAI statement at https://bit.ly/2RdCuQm




 
NAI Member News

Acquired Brain Injury Ireland News

STEP AHEAD is Acquired Brain Injury Ireland's new vocational assessment service to help young people affected by brain injury return to education, training or work. This is a national service offered free of charge to brain injury survivors aged between 18 and 29 years old. We have two centres in Dublin and Cork. Each centre provides one-to-one assessments led by a senior occupational therapist and supported by vocational facilitators. STEP AHEAD also provides essential information and education for employers, tutors and trainers who are supporting people affected by brain injury.  More information: https://www.abiireland.ie/stepahead/ 

 

Huntington's Disease Association of Ireland News 
 
On May 23rd, HDAI together with Irish filmmakers Amanda Spencer and Brian Moore hosted a special preview screening of ‘Dancing At The Vatican’, an inspirational documentary based on the 2017 HDdennomore event ( http://hddennomore.com ). 
GENERATION HD1, the first clinical trial to combat the root cause of HD is now underway. This film follows South American families who,  despite the poverty and isolation of their lives, journey to Rome to meet the Pope and call for an end to the fear and stigma surrounding HD.  The film comes at a time when the need for HD families to participate in research has never been more important.
Dr. Ed Wild and Lauren Byrne HD Centre, UCL,  Institute of Neurology, London,  Dr Niall Pender, Beaumont Hospital, Dublin and Brian Moore (filmmaker) took part in a Q&A facilitated by journalist Mick Clifford to discuss the film and the issues of concern for Irish HD families.






MS Ireland News

A sub group of The Consultative Fora is established over a year now to look at how the Rehabilitation Strategy can be implemented in the South East.
The sub group has also been busy rolling out Chronic Disease Self Management Programme for people living with a long term health condition across the South East with members of NAI/ HSE/DFI on the steering group. This programme is different in that the steering group includes a representative from Family Resource Centres (FRC) and all programmes are taking place in FRCs in the community where people are living so it is more mainstreamed. We are hoping to deliver 5 more programmes in the autumn.  Anyone with any queries can contact PJ Cleere DFI  pjcleere@disability-federation.ie  086-3811064
 
         
Many thanks for taking the time out of your day to read the June 2019 issue which contains all NAI & NAI member news.






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