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Hope2Sleep is urging people not to switch off vital medical equipment - Sleep apnoea symptoms in post-menopausal women linked to low oestrogen - Help Graham Walters fight brain cancer - Sleeping Disorders Centre moves to online clinics - Try the Snore Centre Mobile App
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Snore Centre eNewsletter June 2022

Hope2Sleep is urging people not to switch off vital medical equipment despite the rise in energy prices.

Hull-based sleep apnoea charity Hope2Sleep founder Kath Hope said she was being contacted by people who were worried by the increasing costs of running the CPAP machines that provide air while sleeping.

The BBC reports that Kath Hope said it was a "very real concern. We're constantly being contacted at the charity, emails, private groups, everywhere by people concerned," she said. "They're suddenly wanting to know how much this is costing to run and they're tempted not to use the therapy machine."

One CPAP user is Mark Baggley, who is a disability rights campaigner from Hull. He said he became aware of the cost of using the machine when electricity prices went up. He said he used the machine for about eight hours as night. "It's not a choice, I've got no option. If we have a power cut I wouldn't be able to go to sleep. It's absolutely vital." he said.

Ms Hope said that running a CPAP machine used to cost around £5 a month, before the rise in electricity prices. She said not using it posed a big risk to patients. "It's all pressure on the heart. Oxygen levels are desaturating, that's not good for the body and the biggest link for untreated sleep apnoea would be heart attacks, strokes and driving accidents," she said.

"It's a big, big worry. "Please, please if you are on a CPAP machine don't be tempted to switch it off. Have fewer cups of coffee."

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Sleep apnoea symptoms in post-menopausal women linked to low oestrogen
 

The New Scientist reports on a study that shows middle-aged women who have lower levels of oestrogen and progesterone are more likely to snore, breathe irregularly and gasp while sleeping, which are all symptoms of sleep apnoea. The involvement of these chemicals means targeted hormone therapy might prove useful for post-menopausal women, says Kai Triebner at the University of Bergen in Norway.

“Women live, on average, longer than men, but during later years, the quality of women’s life is comparatively low, which is inherently associated with their [low-oestrogen] hormone profile,” says Triebner. “Snoring and sleep-related breathing problems add to the burden.”

Researchers have long suspected that sleep apnoea is related to menopause, when hormone levels drop and periods cease, he says. A few small studies have pointed to the specific role of the hormones oestrogen and progesterone, but Triebner and his colleagues wanted to test these theories on a bigger scale.

His team interviewed 774 women aged between 40 and 67 years old, mostly white, living in seven European countries about their respiratory health and lifestyles. The team also carried out clinical exams and took blood samples. The women, some of whom hadn’t yet reached menopause, completed questionnaires about their sleep habits and health. The study didn’t include pre or post-menopausal trans men.

Nearly half the women reported that they had a “disturbing snore”, says Triebner. In addition, 14 per cent had irregular breathing and 13 per cent gasped while sleeping. Blood analyses revealed that the participants’ oestrogen and progesterone levels varied widely, ranging from just a few units per litre in some women to tens of thousands of units per litre in others. Those variations had clear associations with sleep apnoea, he says. As the levels of oestrone – a kind of oestrogen – doubled, women were 19 per cent less likely to snore. And as progesterone levels doubled, women were 9 per cent less likely to snore.

The results show a mechanism for the link between menopause and sleep apnoea. And they make sense given that certain kinds of oestrogen are involved in building respiratory muscles, and progesterone helps stimulate respiration, says Triebner who believes an individualised hormone treatment after menopause has great potential to improve the quality of life of many women, and that it most likely would severely improve sleep-disordered breathing,.


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Help Graham Walters fight brain cancer

Spalding man and friend of the Snore Centre Graham Walters was diagnosed in January 2022 with an aggressive Brain Tumour. This cancerous disease, whilst rare is one of the biggest killers of children and adults under 40. It’s been a rough ride since January for Graham and his family, with a lot of hospital appointments. But Graham is not giving up and he is not a statistic - he has too much to live for, his wife Abigail and two children Thomas (11) and Hannah (13) and many many wonderful friends and family members.
 
Graham is accessing all options available on the NHS and he has already undergone 6 weeks of radiotherapy and chemotherapy. But the UK is a long way behind the US and other countries in the treatment of Brain Tumours. The newer and more promising treatments are not available on the NHS in the UK. Graham wants to access the Optune treatment of Tumour Treating Fields, which costs £17,500 per month on a self-funding basis. He also needs to pay for the costs of MRI scans, private second opinions, modifications, equipment (including an off road wheel chair to get him on the football side lines as coach) and potentially other life saving and life extending Chemotherapy and other treatments.
 
Given these eye watering costs, a gofundme page has been started to give Graham the best chance of beating this awful disease and enjoying the wonderful gift of life, watching his children grow up, working and running his football team! 


Make a donation on Graham's gofundmepage...

Check out the redesigned Sleeping Disorders Centre website 

Sleeping Disorders Centre moves to online clinics

Since the outbreak of COVID-19 attending hospitals and clinics in person has been difficult and potentially involves the risk of catching or spreading coronavirus. Therefore, the Sleeping Disorders Centre's services are now available  online for both NHS and private patients.



We are able to deliver the same high quality service either via telephone or online, organising all aspects of care remotely: including sleep studies, diagnosis, CPAP fitting, delivery, maintenance and long-term care.

This means that people suffering from obstructive sleep apnoea and other sleep-related and ENT conditions are still able to access first class care from Mr. Oko, Professor Dhillon and the rest of our clinical team. Our mission to raise awareness of the suffering caused by sleep apnoea, and enable those affected to live normal lives through fast diagnosis and effective treatment, is still continuing depite the challenges of the pandemic.

The Sleeping Disorders Centre's private clinic has moved from Harley Street to The London Digestive Centre, in partnership with HCA Healthcare. All appointments with Mr. Oko are taking place by phone or online, and in person appointments continuing with Prof. Dhillon.



Contact details

Private patients
The London Digestive Centre
41 Welbeck Street
London
Telephone: 020 3797 7248
Email: david.odimayo@sleepthebestmedicine.com

 

 

Have You Tried Our Mobile App?

 

 
Keep up with all the latest news and research on sleep apnoea from the Sleeping Disorders Centre with this nifty free app. Here you can find all our social media channels (YouTube/Facebook/Twitter/Blog) all in one place, right on your phone.

Be sure to let us know what you think of our app by leaving a review on iTunes or the Google Play Store. All your feedback is valuable to us.

 

Download the app for Android devices

Download the app for iOS devices


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