Monthly Newsletter
January 2017, Issue #38
Register Today! Advisory Committee on Heritable Disorders in Newborns & Children to Host Webinar

The next meeting of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) will be held via webinar on February 9, 2017. The Committee will hear presentations and discuss newborn screening cutoffs and algorithms, the National Contingency Plan for Newborn Screening, and the United States Government Accountability Office Newborn Screening Timeliness report. The Committee will also hear updates from the Laboratory Standards and Procedures workgroup, Follow-up and Treatment workgroup, and Education and Training workgroup.

The meeting will take place as a webinar only and will begin at 10:00 AM EST. The meeting is open to the public but advance registration is required. The registration deadline is Wednesday, February 8, 2017. To register, click here.
Thank You, Aidan Jack Seeger Foundation!
Baby's First Test Attends ALD Standards of Care Meeting
In January, the Baby's First Test team attended Aidan Jack Seeger Foundation's first annual ALD Standards of Care meeting! Over the course of two days, passionate clinicians, researchers, parents, and advocates convened in Brooklyn to discuss the future of screening, follow-up, and treatment for Adrenoleukodystrophy (ALD). While there are many challenges ahead, it’s clear that newborn screening is already making a lifesaving impact in New York state and beyond. Thank you to the Aidan Jack Seeger Foundation for having us!
Resource of the Month 
Baby's First Test Resource Center

In 2016, Baby's First Test launched a new section on its site dedicated to newborn screening education and training materials. This is to help new and expecting parents, the public, healthcare professionals, states and policy makers find the information or resources they are looking for in a single, easy-to-find location. It also allows users to order and download educational materials online for free. If you are interested in adding your resource, please email resources@babysfirsttest.org for more information.
Click Here to View Resource Center
Community Corner

2017 APHL Newborn Screening and Genetic Testing Symposium Call for Abstracts Now Open
The Association for Public Health Laboratories (APHL) is now accepting abstracts for the 2017 Newborn Screening and Genetic Testing Symposium on September 10-13, 2017 in New Orleans, LA. All submissions must be completed online. Full details on this process are contained in the Call for Abstracts. Only abstracts submitted online will be considered. The deadline for abstract submission is March 31, 2017.

Nebraska Celebrates 50 Years of Newborn Screening 
The New Year, 2017, marks the 50th anniversary of newborn screening in Nebraska. Congratulations Nebraska! Nebraska is one of only a few states that uses a public-private partnership to achieve newborn screening testing for all babies. To learn more about the Nebraska Department of Health and Human Services’ program, click here.

NYMAC Medical Home Webinar Series Now Approved for CME
Recordings of the NYMAC Medical Home Webinar Series presented January 14 - May 23, 2016 have been approved by the Johns Hopkins University School of Medicine Advisory Committee on Continuing Medical Education for a maximum of 6.0 AMA PRA Category 1 Credits. For information on how to obtain CME credit for these recordings, click here.

Expecting Health Launches Monthly Roundup of Maternal and Child Health News
In January, Genetic Alliance's newest initiative, Expecting Health, launched its first newsletter! Each month, Expecting Health will share the latest updates and news in maternal and child health - everything from planning a pregnancy to early infant care! You can view January's monthly roundup here. To sign up to receive monthly maternal and child health updates, click here. Have feedback or questions? Email info@expectinghealth.org.
Stay Connected

Job Opportunities

Laboratory Staff Scientist
The New England Newborn Screening Program
Massachusetts - To learn more, click here.
Lab Supervisor
The New England Newborn Screening Program
Massachusetts - To learn more, click here.

Health Program Manager II
The California Genetic Disease Screening Program
California - To learn more, click here.

Recorded Webinars

Using Advisory Committees for Newborn Screening Programs

Association of Public Health Laboratories (APHL)
January 9, 2017
To watch, click here.

Upcoming Webinars

Critical Congenital Heart Disease Technical Assistance Webinar
Association of Public Health Laboratories (APHL)
March 24, 2017 at 1:00 PM - 2:00 PM ET
For more information, click here.

Upcoming Meetings

Annual Early Hearing Detection and Intervention Meeting
Sunday, February 26 - Tuesday, February 28, 2017
Atlanta, GA
For more information, click here.

AMCHP Annual Conference 2017
Association of Maternal & Child Health Programs (AMCHP)
Saturday, March 4 - Tuesday, March 7, 2017
Kansas City, MO
For more information, click here.

Genetic Alliance 30th Anniversary Conference & Celebration
Genetic Alliance 
Thursday, March 9 - Friday, March 10, 2017
Washington, DC
For more information, click here.
New Jersey Just Became the First State to Give New Parents Baby Boxes
Approaches to Limit Intervention During Labor and Birth in Low-Risk Pregnancies
FDA Issues New Seafood Advice For Moms-To-Be. Not Everyone is Thrilled. 
Scholarly Article of the Month

         Critical Congenital Heart Disease Newborn Screening Implementation:       

Lessons Learned

Read More
Funding Opportunities

Health Care Delivery System Innovations for Children with Medical Complexity
Deadline: Monday, February 27, 2017
For more details, click here.

Innovative Therapies and Tools for Screenable Disorders in Newborns (R21)
Deadline: Thursday, September 7, 2017
For more details, click here.

To view (R01) (R03), click here.

Natural History of Disorders Identifiable by Screening of Newborns (R01)
Deadline: Wednesday, May 8, 2019
For more details, click here.

Congenital Heart Defect Awareness Week: February 7–14, 2017

For more information on CHD Awareness Week, click here.

The National Clearinghouse is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Cooperative Agreement no. U36MC16509 (Quality Assessment of the Newborn Screening System. Total award amount: $2,900,000). This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government. 

Copyright © 2017 Genetic Alliance, All rights reserved.
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