As young adults with special healthcare needs get older, it’s important for them to think about how their health and healthcare needs may change.

As young adults with special healthcare needs get older, it’s important for them to think about how their health and healthcare needs may change. Throughout the transition from the pediatric healthcare system to the adult healthcare system, it is important young adults with special healthcare needs continue to receive the services and care they need. The critical process of healthcare transition may take many steps over several years as young adults figure out and begin to manage and advocate for their own health and care. Being a Healthy Adult: How to Advocate for Your Health and Health Care (Spanish Version) provides information for young adults with disabilities on advocate for their own health and healthcare needs. It provides examples of situations in which young adults can speak up about their needs, including tips for young adults on interacting with their physicians. Journey to Adulthood: A transitions travel guide from the National Health Care Transition Center provides teens with questions to ask and answers to questions they may have as they plan for the transition process.



We know that every day individuals advocate on behalf of themselves or others to communicate needs, share experiences, and take steps to get what they want and need. Genetic Alliance, Parent to Parent USA, and Family Voices has created the online Advocacy ATLAS (Accessible Tools for Leadership and Advocacy Success) to provide individuals with genetic conditions and their families tools and strategies to advocate to get what they need. Personal stories are included to illustrate positive examples of successful advocacy. The toolkit will feature resources like these on Transition to Adulthood and more. Stay tuned for how the official launch of the Advocacy ATLAS and more Weekly Advocates Tips!

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