Baby's First Test April Newborn Screening Newsletter                                         View this email in your browser
Monthly Newsletter
April 2017, Issue #41
In This Issue:
Only One Month Until Baby's First Test's Beyond the Bloodspot: Education and Engagement Summit
Only one more month until Baby's First Test's education and engagement summit on newborn screening! The summit will be held June 5 - 6, 2017 in Washington, DC at the Kimpton Palomar Hotel. While registration for the summit is free, spots are limited and quickly filling up. If you have questions about the summit, please email Jackie Seisman at
To view the goals and audience for the summit, click here.
To view the draft agenda for the summit,
click here.
To register, click here.
Thank You to the National Healthy Start Association!

On April 3 - 5, Baby's First Test attended and exhibited at the National Healthy Start Association's annual spring conference in Washington, DC. Our team attended educational sessions and shared newborn screening materials with healthcare professionals, case workers, and family advocates from Healthy Start programs across the country. Thank you to the National Healthy Start Association for a great conference!
Contribute to the Resource Center!
Submit Your Newborn Screening Education and Training Resource
Have you seen the interactive Newborn Screening Education and Training Resource Center? The resource center helps new and expecting parents, the public, healthcare professionals, states, and policymakers find the resources they are looking for in a single, easy-to-find location. It also allows users to order and download Baby's First Test materials online for free. Interested in sharing your educational resource with other newborn screening educators? Email for more information!
Search Educational Resources
Looking Ahead: What's Coming Up in May
Visit Baby's First Test at Booth #1017
Attending the American College of Nurse-Midwives (ACNM)'s Annual Meeting on May 21 - 25 in Chicago? Stop by Baby's First Test's booth (#1017) to ask questions, check out our latest newborn screening materials, and learn more about our education and engagement summit. We hope to see you in Chicago!
May is Cystic Fibrosis Awareness Month 
Every May, the Cystic Fibrosis Foundation (CFF) honors Cystic FIbrosis Awareness Month by hosting events, sharing information, and featuring stories of individuals living with disease to raise awareness of cystic fibrosis (CF). Follow CFF on Facebook and Twitter for the latest updates on how to participate. 
Resource of the Month
New Spanish-Language Infographic

Did you know that over 38 million people in the U.S. speak Spanish at home? Baby's First Test is excited to offer a Spanish-language version of our popular "What to Expect from Your Baby's First Test" infographic. Our infographic helps prepare expecting parents for the newborn screening process by explaining what to expect during their baby's first test, and walks them through the heel stick, hearing and pulse ox screenings. This tool helps make newborn screening accessible to both Spanish-speaking families and healthcare professionals who work with these communities. 
Download Infographic

Community Corner

2018 ACMG Annual Conference Call for Scientific Sessions Now Open
The American College of Medical Genetics and Genomics (ACMG) is now accepting proposals for scientific sessions for next year's Annual Clinical Genetics Meeting. ACMG welcomes proposals from member and non-member genetics professionals. In addition to traditional proposal submissions (didactic sessions, panel discussions with several speakers, etc.), they also encourage the submission of alternative format type sessions. Proposals are due by Saturday, May 13, 2017 at 11:59 PM PDT. For submission guidelines and instructions, click here.

APHL Accepting Host Laboratory Applications for Newborn Screening Fellowship
The Association of Public Health Laboratories (APHL) is now accepting applications for laboratories wishing to host trainees in the Ronald H. Laessig Memorial Newborn Screening Fellowship program. This fellowship, sponsored by APHL and the Centers for Disease Control and Prevention (CDC), prepares laboratory scientists for careers in newborn screening. Applications for host laboratories are due by Monday, May 1, 2017 at 11:59 PM EDT. For more information on the fellowship program, requirements for host laboratories, and the application, click here.

CDC Vital Signs Report on Zika Virus: Protecting Women and Babies
The Centers for Disease Control and Prevention (CDC)'s April issue of Vital Signs focuses on how the Zika virus is contracted and how it affects individuals, specifically pregnant women and their fetus. The report also offers an update on the work being done currently to combat the Zika virus, recommendations for Zika prevention during pregnancy, and guidelines targeted to health departments, healthcare providers, and families for management and care. You can read the full report here.

ACHDNC Meeting Registration Now Open
The next meeting of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) will be held in-person and via webcast on May 11 - 12, 2017 at 5600 Fishers Lane, 5th Floor Pavilion, Rockville, MD 20857. Members of the public may submit written and/or present oral comments at the meeting. Whether attending in-person or via webcast, all participants must register for the meeting. The registration deadline is Thursday, May 4, 2017 at 5:00 PM EDT. To register for the meeting, click here. To view the meeting agenda on or after Monday, May 8, click here.
Scholarly Article of the Month
Current Genetic Testing Tools in Neonatal Medicine
Read More
Stay Connected

Job Opportunities

Genetic Counselor - Pediatrics
University of Florida
Gainesville, FL - To learn more, click here.
Clinical Data Specialist I
University of Massachusetts Medical School
Worcester, MA - To learn more, click here.

Newborn Screening Scientist
Virginia Dept. of General Services
Richmond, VA - To learn more, click here.

Upcoming Webinars

Zika Update for Healthcare Professionals
Stanford Center for Continuing Medical Education
May 13, 2017 at 9:00 AM - 10:00 AM PT
For more information, click here.

Upcoming Meetings

Annual National Conference on Health Disparities
Medical University of South Carolina (MUSC)
Wednesday, May 3 - Saturday, May 6, 2017
New Orleans, LA
For more information, click here.

ACHDNC Quarterly Meeting
Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)
Thursday, May 11 - Friday, May 12, 2017
Rockville, MD
For more information, click here.

ACNM Annual Meeting
American College of Nurse-Midwives (ACNM)
Sunday, May 21 - Thursday, May 25, 2017
Chicago, IL
For more information, click here.

NBSTRN Network Meeting 2017
Newborn Screening Translational Research Network (NBSTRN)
Thursday, June 1 - Friday, June 2, 2017
Washington, DC
For more information, click here.

Beyond the Bloodspot: Education and Engagement Summit
Baby's First Test
Monday, June 5 - Tuesday, June 6, 2017
Washington, DC
For more information and to register, click here.
 States Give New Parents Baby Boxes to Encourage Safe Sleep Habits
 Breast-Fed Kids May Be Less Hyper, But Not Necessarily Smarter, Study Finds
One in 10 Pregnant Women with Zika in U.S. Have Babies With Birth Defects
Funding Opportunity
 Increasing NBS Laboratory Capability to Detect SCID Using Next
Generation Sequencing Technologies

Deadline is May 31, 2017
Read More
To view other open newborn screening and maternal-child health funding opportunities, please visit the Funding Opportunities page on Baby's First Test.
Happy Spring!

The Newborn Screening Clearinghouse is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Cooperative Agreement no. U36MC16509 (Quality Assessment of the Newborn Screening System. Total award amount: $2,900,000). This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government. 

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