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NVHR NEWSLETTER – March 2016


Recap: Hepatitis on the Hill
Thank you to everyone who joined us for Hepatitis on the Hill! This event, coordinated in collaboration with Hep B United (HBU) and the Hepatitis Appropriations Partnership (HAP), brought over 100 constituents from 27 states to Capitol Hill to speak with their legislators about the impact of hepatitis B and C in their communities. Check out the Facebook, Twitter, and Storify platforms for photos of the event!
           

NVHR/Project Inform AJMC Case Study Publication
NVHR's Senior Policy Manager, Christine Rodriguez, and Andrew Reynolds, Hepatitis C Education Manager at Project Inform, co-authored a case study published in the American Journal of Managed Care.

The study describes how cost-sharing mechanisms such as plan premiums, deductibles, co-payments, and coinsurance create significant barriers to accessing new curative HCV treatments. Check out the case study
here!

Webinar Archive: Strategies for Addressing Hep C in Indian Country
On March 14th, NVHR hosted a webinar on health disparities in the Native American community. Our panelists discussed health disparities in their communities, including efforts to implement syringe exchanges, the need for opioid substitution therapy, screening efforts in jails, and the goal of eliminating hepatitis C in tribal communities. For slide decks and a recording of the webinar, click here

CARA Passage in the Senate
On March 10th, the Senate passed the Comprehensive Addiction and Recovery Act of 2016 (CARA), S.524. This legislation sets the stage for a broad response to the opioid/heroin epidemic.

Highlights include:

  • Expanded education and awareness activities.
  • Increased access to medication-assisted therapy, including in criminal justice agencies.
  • Alternatives to incarceration, with specific provisions for veterans and families.
  • Incentives for comprehensive state-based response, inclusive of opportunities to address hepatitis C.

CARA – one of precious few initiatives with bipartisan support – still requires approval in the House of Representatives. Passage of this legislation is urgently needed and many of the provisions serve critical roles in viral hepatitis prevention. Keep an eye out for opportunities to support this legislation in the near future!

Annual Report to the Nation on the Status of Cancer
On March 10th, the Center for Disease Control (CDC) released the Report to the Nation on the Status of Cancer.

The report indicated that while the rate of most cancers in the U.S. have declined, liver cancer increased 2.3% between 2003 and 2012, and liver cancer incidence rates have also increased.

The report specifically highlights hepatitis C as a major contributing factor to liver cancer, and added that 25% of people with hepatitis B develop serious liver problems, including liver cancer. Click here to read more.


Hepatitis Awareness Month and Hepatitis Testing Day Planning Call
On Thursday, April 21st at 3pm Eastern, NVHR and Hep B United will host a planning call for community groups to discuss Hepatitis Awareness Month (May) and Hepatitis Testing Day (May 19th). Amanda Carnes, from the CDC, will join the call to share info about CDC resources and campaign materials to assist community groups in raising awareness and promoting screening.

To call in, dial 1-800-216-6327, with access code 716341.


Please Participate!
NVHR’s partner, the Hepatitis C Mentor and Support Group (HCMSG), has put out a survey requesting information from patients about the psychological effects of living with hepatitis C.

Please forward the survey link to patients who might be interested! To access the survey, click here.

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