It's almost time!  

Don't miss out!  Still time to join us in beautiful Prague. 
Online registration ends Friday, 14 October, at 3 pm CDT.
Learn More and Register
Plenary 1 - Sunday, 23 October

Building on Our Foundations, Embracing Our Future

Dave Cella, PhD
Northwestern University
Chicago, Illinois USA

Plenary 2 - Monday, 24 October

Caroline TerweeA Consensus-based National Core Set of Generic PROs and PROMs based on PROMIS

Caroline Terwee, PhD
Amsterdam University Medical Centers
Amsterdam, The Netherlands

Plenary 3 - Monday, 24 October
Matthias Rose
When the Rubber meets the Road - Methodological Challenges Ahead to Integrate PROMs into Medicine

Matthias Rose, MD, PhD
Charité –Universittsmedizin Berlin
Berlin, Germany


We look forward to connecting with you in Prague.

Judy Baumhauer, MD, MPH        Rachel Sisodia, MD        Carole Tucker, PT, PhD    
     President                           Program Co-Chair              Program Co-Chair
ALERT:  PHO Members 
Have you voted to elect the next members of the Board of Directors?

Ten members are running for two positions. Check your email (or spam folder) for candidate information and your link to vote. Balloting ends Friday, October 14. 

Call for Committee Members 

The PHO Board is calling for members to serve on the Education Committee and the Membership Committee.  Responsibilities include participating in meetings (via Zoom) and contributing to the project work of the committee. Members interested in serving on either the Education Committee or the Membership Committee are asked to submit a brief CV and brief statement of interest and experience. Please send documents by November 12 to Zan Lofgren, PHO executive director,

PHO Member Meeting

The PHO Annual Member Meeting will be held on Monday, October 24, at 9:00 am (Central European time) in the Clarion Congress Hotel Prague during the 8th PROMIS International Conference. 

Susan Bartlett, PhD
Secretary, PROMIS Health Organization 

Missed the PROMIS Training Workshop?

Get 8 hours of training on your own schedule  
  • On-Demand Recordings include all sessions, PDFs of presentations, and reference articles
  • Learn the fundamentals of PROMIS and how it is being used in clinical [practice and research
New Publications

Dano S, Lan HH, Macanovic S, et al. Two-step screening for depressive symptoms in patients treated with kidney replacement therapies - cross-sectional analysis. Nephrol Dial Transplant. 2022 Sep. doi: 10.1093/ndt/gfac262. Epub ahead of print.
Dano et al. present a 2-step approach to screening for depressive symptoms. They simulated multiple screening scenarios in a sample of 480 participants on dialysis or who had received kidney transplants. The best balance of sensitivity and specificity was pre-screening with the PHQ-2 (≥1) followed by screening with the PROMIS-Depression (≥53) with “acceptable performance” identifying patients with moderate to severe depressive symptoms. This approach was more efficient at the aggregate-level than using PHQ-9 or PROMIS-Depression alone.
**Readers interested in similar topics are encouraged to look at the new PROMIS “Screen-to-CAT” stopping rules described on for a related strategy that may be helpful to balance response burden with precision.
Hope C, Shen N, Zhang W, et al. A pilot study of the gut microbiota associated with depressive symptoms and sleep disturbance among Chinese and Korean immigrants in the United States. Biol Res Nurs. 2022 Sep. doi: 10.1177/10998004221124273. Epub ahead of print.
This paper by Hope et al. is a small pilot project with 20 Chinese and Korean immigrants in the US that integrates physiological and patient-reported data in an interesting way. Specifically, they examined relationships between gut microbiota (RNA sequencing from fecal specimens) and depressive symptoms (assessed with PROMIS Depression 6a, T-score >55 indicating depressive symptoms) and sleep quality (assessed with Pittsburgh Sleep Quality Index). 
Fowler ME, Murdaugh D, Harmon C, et al. Longitudinal changes in patient-reported cognitive complaints among older adults with gastrointestinal malignancies - results from the Cancer and Aging Resilience Evaluation (CARE) Registry. J Cancer Surviv. 2022 Sep. doi: 10.1007/s11764-022-01254-4. Epub ahead of print.
Fowler et al. examined predictors of follow-up patient-reported cognitive complaints in 218 adults aged 60+ with gastrointestinal cancer. Patients completed a patient-reported geriatric assessment battery, including PROMIS Cognitive Function 4a, at their first visit to a medical oncology clinic and at a visit 2-8 months later. Covariates were assessed using PROMIS Global-10 among other measures. Approximately 50% of participants had unchanged self-reported cognitive complaints at follow-up, 28% worsened, and 21% improved. After adjusting for baseline patient-reported cognition, no other domain on the geriatric assessment battery nor treatment toxicity was significantly associated with patient-reported cognition at follow-up. Using a Bayesian approach, the authors identified that (apart from financial distress as a predictor), the best-fitting models of patient-reported cognitive complaints at follow-up included only baseline patient-reported cognition.
PROMIS Resources
The PHO works in partnership with HealthMeasures. For more information on PROMIS and to access the measures, visit:

New PROMIS+Heart Failure Profiles Available Now! 
Earlier this year, Ahmad et al. published the development and validation of two abbreviated profiles for adults with heart failure (HF): the PROMIS+HF-27 and the PROMIS+HF-10. Paper versions of the PROMIS+HF profiles are now available for download at, and electronic versions will soon be accessible through the REDCap Shared Library.

This work extends the previously published 86-item PROMIS+HF profile measure by introducing two shorter versions that can be more readily administered for research and clinical purposes, respectively. The PROMIS+HF-27 and the PROMIS+HF-10 profiles contain both universal and HF-specific items. Overall, physical, mental, and social summary health scores, as well as PROMIS T-scores in a subset of domains, can be produced from these profiles. Both measures demonstrated good psychometric characteristics and some evidence of responsiveness.  

Grow your network - Find collaborators for your research

Become part of our collaborative international community 

Invite a Colleague to Join
Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government. 

Membership benefits include:
  • Discount registration for the PROMIS International Conference
  • Discount registration for the PROMIS Training  Workshop 
  • PHO e-News for updates on activities and opportunities for engagement
  • Free registration for PHO webinars and access to recorded webinars
  • Free registration for virtual Roundtables
  • INFO HUB - Login for free access to recorded webinars, the member directory, update your profile, add your photo, contact colleagues.
2022 PHO Board
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Please login to the
  • Update your contact information
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  • Pay your dues
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Take advantage of your Member Benefits.
Have you paid your 2022 dues?  Now is the time.

Membership dues are purposely kept low to encourage participation.
News to share? Questions?  Feedback?  Contact Us!

Executive Director - Lousanne "Zan" Lofgren

Meetings and Events - Karen Stenmark

Membership and Registration - Dianne Gilsenan

Corporate Outreach - Deb Whalen
Why am I receiving this newsletter?
You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below. 
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PHO e-News, September 2022 

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