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Important Dates
Save with Early Registration - 8th PROMIS International Conference in Prague
July 20 - Roundtable: Feedback from PROMs to healthcare providers and patients
Oct. 23-24 - PROMIS International Conference in Prague
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Discover New Ideas. Share Your Research. Be Inspired.
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Plenary 1 - Sunday, 23 October
Building on Our Foundations, Embracing Our Future
Dave Cella, PhD
Northwestern University
Chicago, Illinois USA
Plenary 2 - Monday, 24 October
A Consensus-based National Core Set of Generic PROs and PROMs based on PROMIS
Caroline Terwee, PhD
Amsterdam University Medical Centers
Amsterdam, The Netherlands
Plenary 3 - Monday, 24 October
When the Rubber meets the Road - Methodological Challenges Ahead to Integrate PROMs into Medicine
Matthias Rose, MD, PhD
Charité –Universittsmedizin Berlin
Berlin, Germany
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The Annual PROMIS International Conference brings together researchers, clinicians, health system administrators, government and regulatory agencies, pharmaceutical and technology industries, and business entities that provide services utilizing patient outcomes to share their experiences and recent advances utilizing PROMIS measures.
We look forward to connecting with you in Prague.
Judy Baumhauer, MD, MPH Rachel Sisodia, MD Carole Tucker, PT, PhD
President Program Co-Chair Program Co-Chair
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Learn. Share. Engage.
Register Now for the Next Roundtable
July 20 (Wednesday) 8 am CDT / 9 am EDT
 Topic: Routine provision of feedback from patient-reported outcome measurements to healthcare providers and patients in clinical practice
Host: Chris Sidey-Gibbons, PhD, Associate Professor and Deputy Chair, Dept. of Symptom Research, and Director, MD Anderson Center for INSPIRED (Integrated Systems for Patient-Reported Data), Houston, Texas
Dr. Gibbons' presentation will be followed by interactive group discussion.
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Missed the PROMIS Training Workshop?
Get 8 hours of training on your own schedule
- On-Demand Recordings include all sessions, PDFs of presentations, and reference articles
- Learn the fundamentals of PROMIS and how it is being used in clinical [practice and research
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New Publications
Kobayashi LC, O’Shea BQ, Joseph C, Finlay JM. Acute relationships between mental health and cognitive function during the COVID-19 pandemic: Longitudinal evidence from middle-aged and older US adults. SSM Ment Health. 2022;2:100097. doi:10.1016/j.ssmmh.2022.100097
This article explored the relationship between mental health concerns and cognitive function among middle-aged to older adults during the COVID-19 pandemic. Multiple PRO assessments were utilized, including the PROMIS Cognitive Function and Abilities scale. Results showed that increased mental health symptoms (e.g., loneliness, anxiety) were associated with worse cognitive function, foreshadowing long-term impacts on cognitive health as a result of the COVID-19 pandemic.
Ahmed O, Lee A, Vachharajani N, Chang SH, Park Y, Khan AS, Chapman WC, Doyle MM. Reviewing patient-reported outcomes 1 year after orthotopic liver transplantation. J Am Coll Surg. 2022;235(1):69-77. doi:10.1097/XCS.0000000000000244
This study investigated longer-term functional recovery and quality of life among patients after liver transplantation. Study participants (n=174) were surveyed at 3, 6 and 12 months following liver transplant surgery and completed the PROMIS 29-Profile assessment. While most domains improved, the domains of anxiety and sleep disturbance did not. Physical function, pain interference and depression scores – while high immediately postoperatively – returned to normative levels by 12 months. Further work is needed to understand barriers to anxiety and sleep domain improvement during the postoperative period.
Patil SJ, Tallon E, Wang Y, Nayyar M, Hodges K, Phad A, Rodriguez E, Gefter L. Effect of stanford youth diabetes coaches’ program on youth and adults in diverse communities. Fam Community Health. 2022;45(3):178-186. doi:10.1097/FCH.0000000000000323
This study describes an intervention to train youth and adult family members to serve as coaches for diabetes prevention in underserved areas. PROMIS measures, including the Pediatric Sense of Meaning and Purpose and Adult Global Health and Self-efficacy scales were utilized to evaluate the impact of training on youth and family member wellbeing. Survey data were also merged with qualitative data from participants. Results demonstrated a significant increase in youth sense of meaning and purpose and improved health behaviors (e.g., diet, physical activity) following the training. Family member involvement was also shown to mediate the relationships between training participation and improved health behaviors.
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Congratulations are in order!
 Judith Baumhauer, MD, MPH, Professor of Orthopaedics at the University of Rochester, has been named to the newly created position of Associate Dean for Academic Affairs at the university. "With her deep base of knowledge about our institution, her strong commitment to our mission and her track record of success in numerous areas, Dr. Baumhauer is an excellent choice to help [the Academic Affairs] team as their work continues to expand in scope and complexity," says URMC CEO Mark Taubman. "Our entire institution will benefit from her expertise." Dr. Baumhauer is the current president of the PHO.
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Invite a Colleague to Join
Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government.
Membership benefits include:
- Discount registration for the PROMIS International Conference
- Discount registration for the PROMIS Training Workshop
- PHO e-News for updates on activities and opportunities for engagement
- Free registration for PHO webinars and access to recorded webinars
- Free registration for virtual Roundtables
- INFO HUB - Login for free access to recorded webinars, the member directory, update your profile, add your photo, contact colleagues.
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Does your Member Profile need a refresh?
Please login to the PHO INFO HUB
- Update your contact information
- Add your photo
- Complete your profile
- Pay your dues
- View the member directory
- Connect with fellow members
- Access recorded webinars
Have you paid your 2022 dues? Now is the time.
Membership dues are purposely kept low to encourage participation.
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PROMIS Resources
The PHO works in partnership with HealthMeasures. For more information on PROMIS and to access the measures, visit: healthmeasures.net
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News to share? Questions? Feedback? Contact Us!
Executive Director - Lousanne "Zan" Lofgren zan-lofgren@promishealth.org
Meetings and Events - Karen Stenmark karen-stenmark@promishealth.org
Membership and Registration - Dianne Gilsenan dianne-gilsenan@promishealth.org
Corporate Outreach - Deb Whalen deb-whalen@promishealth.org
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Why am I receiving this newsletter?
You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below.
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