Welcome to the July PHO e-News
Important Dates

Save with Early Registration - 8th PROMIS International Conference in Prague

July 20 - Roundtable: Feedback from PROMs to healthcare providers and patients

Oct. 23-24 - PROMIS International Conference in Prague
Discover New Ideas. Share Your Research. Be Inspired.

Early Registration is Open
Register Now and Save - Learn More

Join us in beautiful, historic Prague!
Plenaries - Oral Poster Sessions - Roundtables - Posters - Mentoring
Pre-conference Workshops - Poster Walk - Welcome Reception 

Connecting in Person - Pricelsss

Plenary 1 - Sunday, 23 October

Building on Our Foundations, Embracing Our Future

Dave Cella, PhD
Northwestern University
Chicago, Illinois USA

Plenary 2 - Monday, 24 October

Caroline Terwee

A Consensus-based National Core Set of Generic PROs and PROMs based on PROMIS

Caroline Terwee, PhD
Amsterdam University Medical Centers
Amsterdam, The Netherlands

Plenary 3 - Monday, 24 October
Matthias Rose
When the Rubber meets the Road - Methodological Challenges Ahead to Integrate PROMs into Medicine

Matthias Rose, MD, PhD
Charité –Universittsmedizin Berlin
Berlin, Germany

The Annual PROMIS International Conference brings together researchers, clinicians, health system administrators, government and regulatory agencies, pharmaceutical and technology industries, and business entities that provide services utilizing patient outcomes to share their experiences and recent advances utilizing PROMIS measures.

We look forward to connecting with you in Prague.

Judy Baumhauer, MD, MPH        Rachel Sisodia, MD        Carole Tucker, PT, PhD    
     President                           Program Co-Chair              Program Co-Chair
Learn. Share. Engage.people at roundtable
Register Now for the Next Roundtable 
July 20 (Wednesday) 8 am CDT / 9 am EDT 

Chris GibbonsTopic:  Routine provision of feedback from patient-reported outcome measurements to healthcare providers and patients in clinical practice

Host: Chris Sidey-Gibbons, PhD, Associate Professor and Deputy Chair, Dept. of Symptom Research, and Director, MD Anderson Center for INSPIRED (Integrated Systems for Patient-Reported Data), Houston, Texas
 Dr. Gibbons' presentation will be followed by interactive group discussion.                                              

Missed the PROMIS Training Workshop?

Get 8 hours of training on your own schedule  
  • On-Demand Recordings include all sessions, PDFs of presentations, and reference articles
  • Learn the fundamentals of PROMIS and how it is being used in clinical [practice and research
New Publications

Kobayashi LC, O’Shea BQ, Joseph C, Finlay JM. Acute relationships between mental health and cognitive function during the COVID-19 pandemic: Longitudinal evidence from middle-aged and older US adults. SSM Ment Health. 2022;2:100097. doi:10.1016/j.ssmmh.2022.100097

This article explored the relationship between mental health concerns and cognitive function among middle-aged to older adults during the COVID-19 pandemic. Multiple PRO assessments were utilized, including the PROMIS Cognitive Function and Abilities scale.  Results showed that increased mental health symptoms (e.g., loneliness, anxiety) were associated with worse cognitive function, foreshadowing long-term impacts on cognitive health as a result of the COVID-19 pandemic.
Ahmed O, Lee A, Vachharajani N, Chang SH, Park Y, Khan AS, Chapman WC, Doyle MM. Reviewing patient-reported outcomes 1 year after orthotopic liver transplantation. J Am Coll Surg. 2022;235(1):69-77. doi:10.1097/XCS.0000000000000244
This study investigated longer-term functional recovery and quality of life among patients after liver transplantation.  Study participants (n=174) were surveyed at 3, 6 and 12 months following liver transplant surgery and completed the PROMIS 29-Profile assessment.  While most domains improved, the domains of anxiety and sleep disturbance did not.  Physical function, pain interference and depression scores – while high immediately postoperatively – returned to normative levels by 12 months. Further work is needed to understand barriers to anxiety and sleep domain improvement during the postoperative period.
Patil SJ, Tallon E, Wang Y, Nayyar M, Hodges K, Phad A, Rodriguez E, Gefter L. Effect of stanford youth diabetes coaches’ program on youth and adults in diverse communities. Fam Community Health. 2022;45(3):178-186. doi:10.1097/FCH.0000000000000323
This study describes an intervention to train youth and adult family members to serve as coaches for diabetes prevention in underserved areas.  PROMIS measures, including the Pediatric Sense of Meaning and Purpose and Adult Global Health and Self-efficacy scales were utilized to evaluate the impact of training on youth and family member wellbeing. Survey data were also merged with qualitative data from participants.  Results demonstrated a significant increase in youth sense of meaning and purpose and improved health behaviors (e.g., diet, physical activity) following the training.  Family member involvement was also shown to mediate the relationships between training participation and improved health behaviors.
Congratulations are in order!

Judy BaumhauerJudith Baumhauer, MD, MPH, Professor of Orthopaedics at the University of Rochester, has been named to the newly created position of Associate Dean for Academic Affairs at the university. "With her deep base of knowledge about our institution, her strong commitment to our mission and her track record of success in numerous areas, Dr. Baumhauer is an excellent choice to help [the Academic Affairs] team as their work continues to expand in scope and complexity," says URMC CEO Mark Taubman. "Our entire institution will benefit from her expertise." Dr. Baumhauer is the current president of the PHO. 
Grow your network - Find collaborators for your research

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Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government. 

Membership benefits include:
  • Discount registration for the PROMIS International Conference
  • Discount registration for the PROMIS Training  Workshop 
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PROMIS Resources
The PHO works in partnership with HealthMeasures. For more information on PROMIS and to access the measures, visit:
News to share? Questions?  Feedback?  Contact Us!

Executive Director - Lousanne "Zan" Lofgren

Meetings and Events - Karen Stenmark

Membership and Registration - Dianne Gilsenan

Corporate Outreach  - Deb Whalen
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You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below. 
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PHO e-News, July 2022 

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