It's a New Year and New Opportunities 
Watch for the Call for Abstracts in February

The 9th Annual PROMIS International Conference
Chairs:  Juhee Cho, PhD and Eric Makhni, MD, MBA

Driving innovation in patient-centered design: 
powered by PROMIS
Save the Dates!  October 22-24, 2023
Banff, Canada

The PHO's diversity is its strength.
Gather with colleagues -- new and old -- at the PHO conference.
Join us in Banff in the beautiful Canadian Rocky Mountains. 

Get on the PHO bus to Banff after the ISOQOL conference. 
A Highlight from the 2022 ConferenceDave Cella

Building on Our Foundation,
Embracing the Future 

Dave Cella, PhD

Tune in for Dr. Cella's opening plenary at the fall conference in Prague and then join him for live Q&A. 

His presentation tracks the exponential growth of PROMIS from development to its position today as the gold standard for capturing the patient's voice in healthcare research and clinical care. 
Wednesday, February 22
8 am CDT - Recorded presentation
9 am CDT - Live discussion with Dr. Cella

Click to register

Dr. Cella is the PHO President and Director, Institute for Public Health and Medicine (IPHAM) - Center for Patient-Centered Outcomes, and Professor, Dept. of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago, USA.  

Watch (or re-watch)
conference sessions
on your own time 
Missed the conference?

Register for the recordings

- 3 Plenary Presentations
 - 24 Oral Research Papers
Conference registrants

Chairs:  Jeff Houck, PT, PhD and Jacob Lippa, MPH

Get the training you need to take PROMIS to the next level in your institution

Make plans for June in Chicago - Watch for updates



Join the PHO in 2023!  
Be part of the PHO's collaborative international communityGlobe
PHO members work in universities, health systems, government, the pharmaceutical and technology fields, and business entities that contribute to patient-centered care. The diversity of the PHO membership is its strength. 
"The colleagues and partnerships I have developed with PROMIS partners around the globe have been incredibly important and rewarding."  
Susan Bartlett, PhD
New Publications

Yedulla NR, Hester JD, Patel MM, Cross AG, Peterson EL, Makhni EC. Pre-visit digital messaging improves patient-reported outcome measure participation prior to the orthopaedic ambulatory visit. J Bone Joint Surg Am. 2022 Dec 2. doi:10.2106/JBJS.21.00506.
This prospective randomized controlled trial in an orthopaedic surgery context examined the effect of three strategies on pre-visit response rates for digital collection of PROMs (including several PROMIS CATs): no reminder, e-mail reminder, patient portal reminder. Only patients with an active patient portal were included. Patients in either reminder group received a notification to compete the PROMs 1 week before the visit with a second reminder message 3 days before. Patients in the no reminder group received only a generic automatic message about a new message in the patient portal 3 days before the visit. The analysis included 291 patients, with a response rate of 30% for the no reminder, 49% for the patient portal reminder, and 52% for the email reminder. The response rate in both reminder groups was higher than for the no reminder group, highlighting a potential strategy to increase remote PROM collection.
Parkhurst JT, Von Mach T, Vesco AT, Kerns CE, Lavigne JV. Comparative analysis of pediatric anxiety measures in clinical sample: evaluation of the PROMIS pediatric anxiety short forms. Qual Life Res. 2022 Dec 29. doi: 10.1007/s11136-022-03333-6

The authors examined the concurrent validity of the PROMIS-Pediatric Anxiety Short Form (self-report and proxy-report) compared to a well-established dimensional measure of pediatric anxiety (Screen for Child Anxiety and Related Emotional Disorder [SCARED]). There was a moderate correlation between PROMIS scores and some dimensions of the SCARED and a low or negligible correlation for other dimensions. The authors also looked at diagnostic accuracy and found that the area under the curve for some PROMIS predictions was acceptable but others were poor. In contrast, the area under the curve for SCARED predictions was acceptable to outstanding. The authors suggest additional psychometric investigation of PROMIS-Anxiety in clinical youth samples, especially relative to specific anxiety subtypes.
Dee JM, Littenberg B. Regional vs global physical therapy interventions to treat chronic pain in survivors of trauma: a randomized controlled trial. J Man Manip Ther. 2022 Dec 25:1-12. doi: 10.1080/10669817.2022.2159615. Epub ahead of print. PMID: 36567611.
The authors used the PROMIS-Physical Function CAT as the primary outcome in this clinical trial. They examined the effects of a 6-week impairment-based regional physical therapy approach versus a 6-week “global” physical therapy approach (pain neuroscience education, graded motor imagery, exercise) for adults with chronic pain and a history of trauma. Secondary outcomes included PROMIS-Pain Interference CAT and PROMIS-29. There was no significant between-group difference for the primary outcome. However, while white participants had reduced pain interference with both interventions, nonwhite participants only had reduced pain interference with the global intervention, highlighting potential racial and ethnic differences related to pain cognitions and behaviors.
Save the Date!
The NIH Toolbox® V3 Virtual Conference 
Friday, March 24, 2023
  • Part 1: V3 Product Introduction 11:00 a.m. – 1:00 p.m. EDT
  • Part 2: V3 Technical Overview 1:30 – 3:00 p.m. EDT 
 Learn how the latest version of the NIH Toolbox iPad app can assist with your neurological and behavioral assessment needs. In Part 1, gain an introduction to the new V3 assessment suite, including a preview of the streamlined app interface and workflows, as well as updated support materials and resources. Hear about newly added tests, updated tests and updated norms. In part 2, obtain a technical overview of V3 norming and validation studies, changes users can expect from V2 to V3, and how to transition longitudinal studies to the new V3 iPad app.  
Presenters: Elizabeth M. Dworak, PhD, MS, Richard Gershon, PhD, Emily Ho, PhD, Julie N. Hook, PhD, MBA, ABPP, Aaron Kaat, PhD, Erica LaForte, PhD.
Email for more details: 
Follow NIHToolbox on: Facebook, LinkedIn, and Twitter: @NIHToolbox
PROMIS Resources
The PHO works in partnership with HealthMeasures. For more information on PROMIS measures, visit

For questions on PROMIS measures, requests for permission to use the measures, translations, and to access the measures, email  
PROMIS PDFs are Administration - Ready

Learn more at

Here are the most commonly requested PDFs  
(May 1, 2017 - August 31, 2022)
  # Downloads
PROMIS Scale v1.2 - Global Health  24,329
PROMIS Profile - v2.1 - PROMIS-29 9,682
PROMIS Short Form v2.0 - Physical Function 10a 8,281
PROMIS Bank v2.0 - Physical Function 7,504
PROMIS Short Form v1.0 - Anxiety - 4a  6,536
PROMIS Item Bank v1.1 - Pain Interference 6,083
PROMIS Short Form v1.0 - Depression - 4a 5,912
PROMIS Numeric Rating Scale v1.0 - Pain Intensity - 1a 5,313
PROMIS Short Form v1.0 - Sleep Disturbance 5,013
PROMIS Item Bank v1.0 - Anxiety 4,842
Invite a Colleague to Join
Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government. 

Membership benefits include:
  • Discount registration for the PROMIS International Conference
  • Discount registration for the PROMIS Training  Workshop 
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  • Free registration for PHO webinars and access to recorded webinars
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Take advantage of your Member Benefits.
Have you paid your 2023 dues?  Now is the time.

Membership dues are purposely kept low to encourage participation.
News to share? Questions?  Feedback?  Contact Us!

Executive Director - Lousanne "Zan" Lofgren

Meetings and Events - Karen Stenmark

Membership and Registration - Dianne Gilsenan

Corporate Support - Deb Whalen
Why am I receiving this newsletter?
You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below. 
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