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Discover New Research. Share Your Ideas. Make Connections.
Join us in beautiful historic Prague
3 Plenaries - 8 Oral Poster Sessions - 13 Roundtables
3 Pre-conference Workshops - Poster Hall
One-to-One Mentoring - Poster Walk - Welcome Reception
Connecting in Person - Priceless
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Plenary 1 - Sunday, 23 October
Building on Our Foundations, Embracing Our Future
Dave Cella, PhD
Northwestern University
Chicago, Illinois USA
Plenary 2 - Monday, 24 October
A Consensus-based National Core Set of Generic PROs and PROMs based on PROMIS
Caroline Terwee, PhD
Amsterdam University Medical Centers
Amsterdam, The Netherlands
Plenary 3 - Monday, 24 October
When the Rubber meets the Road - Methodological Challenges Ahead to Integrate PROMs into Medicine
Matthias Rose, MD, PhD
Charité –Universittsmedizin Berlin
Berlin, Germany
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The PROMIS International Conference brings together researchers, clinicians, health system administrators, government and regulatory agencies, pharmaceutical and technology industries, and business entities that provide services utilizing patient outcomes to share their experiences and recent advances utilizing PROMIS measures.
We look forward to connecting with you in Prague.
Judy Baumhauer, MD, MPH Rachel Sisodia, MD Carole Tucker, PT, PhD
President Program Co-Chair Program Co-Chair
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Call for Nominations for the PHO Board of Directors
The PHO Board is soliciting nominations for two positions on the PHO Board of Directors (three-year term, November 2022 – October 2025). The Board is made up of nine members, including officer positions. Responsibilities include participating in monthly Board calls (via Zoom), annual conferences and workshops, advocating for PHO membership, hosting or facilitating a PHO webinar or roundtable, and contributing to special projects.
Members interested in being considered are asked to submit a brief CV and a personal statement (up to 150 words) on their experience with PROMIS and interest and vision for the PHO. Please send documents by September 25 to Zan Lofgren, PHO executive director, Zan-Lofgren@promishealth.org. An electronic ballot will be sent to all PHO members in early October.
Call for Committee Members
The PHO Board is calling for members to serve on the Education Committee and the Membership Committee. Responsibilities include participating in meetings (via Zoom) and contributing to the project work of the committee. Members interested in serving on either the Education Committee or the Membership Committee are asked to submit a brief CV and brief statement of interest and experience. Please send documents by September 25 to Zan Lofgren, PHO executive director, Zan-Lofgren@promishealth.org.
PHO Member Meeting
The PHO Annual Member Meeting will be held on Monday, October 24, at 9:00 am (Central European time) in the Clarion Congress Hotel Prague during the 8th PROMIS International Conference.
Susan Bartlett, PhD
Secretary, PROMIS Health Organization
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Missed the PROMIS Training Workshop?
Get 8 hours of training on your own schedule
- On-Demand Recordings include all sessions, PDFs of presentations, and reference articles
- Learn the fundamentals of PROMIS and how it is being used in clinical [practice and research
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NAM report highlights PROMIS
A new consensus study report released by the National Academies of Sciences Engineering and Medicine (NAM) brings focus on PROMIS as a sustainable structure for common measurement. The report highlights a commissioned paper, Ontologies in Patient Reported Outcomes: Conceptual issues and challenges addressed by the Patient-Reported Outcomes Measurement Information System (PROMIS), by David Cella and Ron D. Hays. The full NAM study report, Ontologies in the Behavioral Sciences: Accelerating Research and the Spread of Knowledge is available for free download.
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New Publications
Towards standardization of measuring anxiety and depression: Differential item functioning for language and Dutch reference values of PROMIS item banks
Elsman EBM, Flens G, de Beurs E, Roorda LD, Terwee CB. PLoS One. 2022 Aug 23.eCollection 2022. https://doi.org/10.1371/journal.pone.0273287
Cross-cultural validity of PROMIS measures is essential for the dissemination of standardized measurements across the globe. The authors of this study evaluated the cross-cultural validity of PROMIS Anxiety and Depression item banks between the United States and the Netherlands. Differential item functioning of all items in both item banks was tested based on data from the Dutch general population and PROMIS wave 1. McFadden’s pseudo R2-change of 2% was used as the critical threshold. In both item banks, two items had DIF but with minimal impact on population level T-scores for full item banks and short forms. The authors concluded that the limited number of items with DIF and its minimal impact, enables the use of standard (US) item parameters and comparisons of scores between Dutch and US populations.
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A Patient Reported Outcome Ontology: Conceptual Issues and Challenges Addressed by the Patient-Reported Outcomes Measurement Information System® (PROMIS ®)
Cella D, Hays RD. Patient Relat Outcome Meas. 2022 Aug 15. eCollection 2022. https://doi.org/10.2147/prom.s371882
The authors briefly review the history of measuring perceptions of health and quality of life, followed by an examination of conceptual issues related to terminology that have led to potentially conflicting ontologies. Challenges posed by the lack of consensus on common meaning and the proliferation of measures are discussed. The ontology adopted PROMIS is suggested as a potential solution. In addition, the authors discuss issues associated with mapping the PROMIS domain framework onto other familiar ontologies and recommend a way forward for PROMIS to provide a sustainable ontological structure to enable coherent common measurement.
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Evaluation of PROMIS Cognitive Function Scores and Correlates in a Clinical Sample of Older Adults
Edelen MO, Harrison JM, Rodriguez A, Weir R, Lai JS, Langer MM, Hanmer
J. Gerontol Geriatr Med. 2022 Aug 13. eCollection 2022.
https://doi.org/10.1177/23337214221119057
Mild cognitive impairment is an early warning sign of dementia. In this study the authors assessed the utility of self-reported cognitive function using two PROMIS Cognitive Function (PROMIS-CF) items in an observational clinical sample of patients aged 65 and older (n = 16,249). The association of PROMIS-CF scores with clinical characteristics and Montreal Cognitive Assessment (MoCA) scores was evaluated, and logistic regression was used to examine predictors of 1-year decline in PROMIS-CF scores among patients with available data. PROMIS-CF scores were associated with lower (more impaired) scores for patients with cognitive impairment (CI) diagnoses, multiple comorbidities, and those taking cognitive enhancing or interfering medications. PROMIS-CF scores were also positively associated with MoCA scores. Predictors of 1-year decline in PROMIS-CF scores included CI diagnoses, use of cognitive enhancing medications, higher depression scores, and lower social role function. The authors conclude that PROMIS-CF items may be used in a brief patient-administered screening tool for CI.
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Invite a Colleague to Join
Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government.
Membership benefits include:
- Discount registration for the PROMIS International Conference
- Discount registration for the PROMIS Training Workshop
- PHO e-News for updates on activities and opportunities for engagement
- Free registration for PHO webinars and access to recorded webinars
- Free registration for virtual Roundtables
- INFO HUB - Login for free access to recorded webinars, the member directory, update your profile, add your photo, contact colleagues.
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Does your Member Profile need a refresh?
Please login to the PHO INFO HUB
- Update your contact information
- Add your photo
- Complete your profile
- Pay your dues
- View the member directory
- Connect with fellow members
- Access recorded webinars
Have you paid your 2022 dues? Now is the time.
Membership dues are purposely kept low to encourage participation.
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PROMIS Resources
The PHO works in partnership with HealthMeasures. For more information on PROMIS and to access the measures, visit: healthmeasures.net
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News to share? Questions? Feedback? Contact Us!
Executive Director - Lousanne "Zan" Lofgren zan-lofgren@promishealth.org
Meetings and Events - Karen Stenmark karen-stenmark@promishealth.org
Membership and Registration - Dianne Gilsenan dianne-gilsenan@promishealth.org
Corporate Outreach - Deb Whalen deb-whalen@promishealth.org
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Why am I receiving this newsletter?
You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below.
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