Save Now with Early Registration
The 4th Annual PROMIS Training Workshop
Moving from PROMIS basics to advanced use
in clinical care and research settings
Chairs:
Jeff Houck, PT, PhD
George Fox University, Newburg, Oregon
Jacob Lippa, MPH
Providence, Greater Seattle area
June 22-23, 2023 - Chicago
Northwestern Medicine Prentice Women's Hospital
Learn more
Get the PROMIS training you need. Bring your team.
Take PROMIS to the next level at your institution.
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Plan ahead for Banff - Share Your Research - Submit Your Abstract
Click for abstract information
Gather with colleagues -- new and old -- at the PHO conference
in the beautiful Canadian Rocky Mountains.
Get on the PHO bus to Banff after the ISOQOL conference.
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Attention Trainees
Share Your Research in Banff - Submit an Abstract
Poster Awards for Trainees
Best Psychometric Poster
Best Application of PROMIS Poster
Apply for a Conference Scholarship
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Missed the 2022 PHO Conference
in Prague?
Watch (or re-watch) on your own time
3 Plenaries
24 Oral Papers
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 PROTEUS Consortium is collaborating with Pfizer to offer a grant funding opportunity to support the use of patient-reported outcome measures (PROMs) in clinical practice to improve the monitoring and management of patients with cancer. Letters of intent are due April 28.
Learn more. |
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 Save the Date!
The NIH Toolbox® V3 Virtual Conference
Friday, March 24, 2023
- Part 1: V3 Product Introduction 11:00 a.m. – 1:00 p.m. EDT
- Part 2: V3 Technical Overview 1:30 – 3:00 p.m. EDT
Learn how the latest version of the NIH Toolbox iPad app can assist with your neurological and behavioral assessment needs. In Part 1, gain an introduction to the new V3 assessment suite, including a preview of the streamlined app interface and workflows, as well as updated support materials and resources. Hear about newly added tests, updated tests and updated norms. In part 2, obtain a technical overview of V3 norming and validation studies, changes users can expect from V2 to V3, and how to transition longitudinal studies to the new V3 iPad app.
Presenters: Elizabeth M. Dworak, PhD, MS, Richard Gershon, PhD, Emily Ho, PhD, Julie N. Hook, PhD, MBA, ABPP, Aaron Kaat, PhD, Erica LaForte, PhD.
Email for more details: Help@NIHToolbox.org
Follow NIHToolbox on: Facebook, LinkedIn, and Twitter: @NIHToolbox
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Join the PHO in 2023!
Be part of the PHO's collaborative international community
 PHO members work in universities, health systems, government, the pharmaceutical and technology fields, and business entities that contribute to patient-centered care. The diversity of the PHO membership is its strength.
"The colleagues and partnerships I have developed with PROMIS partners around the globe have been incredibly important and rewarding."
Susan Bartlett, PhD
McGill University, Montreal, Canada
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New Publications
Oude Voshaar M, Terwee CB, Haverman L, van der Kolk B, Harkes M, van Woerden CS, van Breda F, Breukink S, de Hoop I, Vermeulen H, de Graaf E, Hazelet J, van Leiden B, Stienen J, Hoekstra M, Bart H, van Bommel H, Determann D, Verburg M, van der Wees P, Beurskens AJ. Development of a standard set of PROs and generic PROMs for Dutch medical specialist care: Recommendations from the Outcome-Based Healthcare Program Working Group Generic PROMs. Qual Life Res. 2023 Feb 9. doi: 10.1007/s11136-022-03328-3. Epub ahead of print. PMID: 36757571.
This paper describes a co-creation process of developing a consensus-based standard set of generic PROMs for implementation in Dutch medical specialist care. The working group consisted of representatives from multiple organizations and stakeholder groups. The group first identified key domains/subdomains of outcomes and then selected specific measures. Multiple PROMs were selected for a domain/subdomain if they could be linked to the PROMIS T-score metric. The preferred PROMs included items from the PROMIS Global-10, PROMIS Ability to Participate in Social Roles and Activities, PROMIS Physical Function, PROMIS Depression, PROMIS Fatigue, and Numeric Rating Scale Pain Intensity. Of note, none of the included PROMs met all the acceptability and understandability standards, highlighting room for additional measure refinement and/or development to support use in diverse populations, including those with limited health literacy.
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Foster CC, Blackwell CK, Kan K, Morales L, Cella D, Shaunfield S. Parental self-efficacy managing a child's medications and treatments: adaptation of a PROMIS measure. J Patient Rep Outcomes. 2023 Feb 3;7(1):10. doi: 10.1186/s41687-023-00549-z. PMID: 36735145.
This paper describes the adaptation of a condition-agnostic adult PROMIS measure of self-efficacy for managing medications and treatments for use by English-speaking and Spanish-speaking parents of children with chronic disease. The existing bank of 26 items was rephrased for use by parents, and a targeted literature review resulted in drafting of 7 additional pediatric-relevant measures. The item pool was refined through multidisciplinary feedback, including parent-advocates. Items were then further refined through cognitive interviews. The final questionnaire included 30 items across 9 domains; 14 items were identified as relevant for all parents, and 16 items were identified as relevant for parents of children with specific medical needs.
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Giladi AM, Shipp MM, Sanghavi KK, Zhang G, Gupta S, Miller KE, Belouali A, Madhavan S. Patient-reported data augment health record data for prediction models of persistent opioid use after elective upper extremity surgery. Plast Reconstr Surg. 2023 Feb 14. doi: 10.1097/PRS.0000000000010297. Epub ahead of print. PMID: 36780362.
The authors examined a machine learning approach using demographics, preoperative patient-reported data (PROMs, medical history, and socioeconomic status), and electronic health record data (medical history, medication use, and surgical care) to predict persistent opioid use after elective upper extremity surgery. Models were trained using 6-week opioid use data in a 2018 cohort. Models were evaluated in a 2019 cohort with 6-week, 3-month, and 6-month opioid use as outcomes. The best-performing models included both patient-reported and electronic health record data. Top protective features were preoperative PROMIS Global Physical Health, preoperative PROMIS Upper Extremity, and White race. Top factors predicting prolonged use were history of tobacco, drug use disorder, cancer, or alcohol abuse; “other” race; and higher family income. The findings support the value of including PROM data in prediction models for clinical use.
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Congratulations are in order!
 PHO member Kelly Hynes, MD has been selected as an inaugural recipient of the Women’s Leadership Scholarship by the American Orthopaedic Foot & Ankle Society (AOFAS). She will have the opportunity to attend leadership training this Spring. Dr. Hynes has also been named as an AOFAS Fellow for the 2023 EFAS/AOFAS Exchange Program. In November she will attend the European Foot and Ankle Society symposium in Madrid and visit foot and ankle sites in Europe. Dr. Hynes is an orthopaedic foot and ankle surgeon at the University of Chicago.
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PROMIS Resources
The PHO works in partnership with HealthMeasures.
For more information on PROMIS measures, visit HealthMeasures.net.
For questions on PROMIS measures, requests for permission to use the measures, translations, and to access the measures, email help@healthmeasures.net.
Looking for PROMIS articles?
HealthMeasures maintains a list of primary citations for PROMIS measures published by year.
See PROMIS articles listed by year.
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Invite a Colleague to Join the PHO
Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government.
Membership benefits include:
- Discount registration for the PROMIS International Conference
- Discount registration for the PROMIS Training Workshop
- PHO e-News for updates on activities and opportunities for engagement
- Free registration for PHO webinars and access to recorded webinars
- Free registration for virtual Roundtables
- INFO HUB - Login for free access to recorded webinars, the member directory, update your profile, add your photo, contact colleagues.
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Does your Member Profile need a refresh?
Please login to the PHO INFO HUB
- Update your contact information
- Add your photo
- Complete your profile
- Pay your dues
- View the member directory
- Connect with fellow members
- Access recorded webinars
Have you paid your 2023 dues? Now is the time.
Membership dues are purposely kept low to encourage participation.
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News to share? Questions? Feedback? Contact Us!
Executive Director - Lousanne "Zan" Lofgren zan-lofgren@promishealth.org
Meetings and Events - Karen Stenmark karen-stenmark@promishealth.org
Membership and Registration - Dianne Gilsenan dianne-gilsenan@promishealth.org
Corporate Support - Deb Whalen deb-whalen@promishealth.org
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Why am I receiving this newsletter?
You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below.
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