We're Looking Ahead to Prague - Join Us  

Discover New Research. Share Your Ideas. Make Connections. 
Join us in beautiful historic Prague
3 Plenaries - 8 Oral Poster Sessions - 13 Roundtables
3 Pre-conference Workshops - Poster Hall 
One-to-One Mentoring - Poster Walk - Welcome Reception 
Connecting in Person - Priceless
Learn More and Register
Plenary 1 - Sunday, 23 October

Building on Our Foundations, Embracing Our Future

Dave Cella, PhD
Northwestern University
Chicago, Illinois USA

Plenary 2 - Monday, 24 October

Caroline Terwee

A Consensus-based National Core Set of Generic PROs and PROMs based on PROMIS

Caroline Terwee, PhD
Amsterdam University Medical Centers
Amsterdam, The Netherlands

Plenary 3 - Monday, 24 October
Matthias Rose
When the Rubber meets the Road - Methodological Challenges Ahead to Integrate PROMs into Medicine

Matthias Rose, MD, PhD
Charité –Universittsmedizin Berlin
Berlin, Germany


The PROMIS International Conference brings together researchers, clinicians, health system administrators, government and regulatory agencies, pharmaceutical and technology industries, and business entities that provide services utilizing patient outcomes to share their experiences and recent advances utilizing PROMIS measures.
We look forward to connecting with you in Prague.

Judy Baumhauer, MD, MPH        Rachel Sisodia, MD        Carole Tucker, PT, PhD    
     President                           Program Co-Chair              Program Co-Chair
Interested in Sponsorship? Please click.
Call for Nominations for the PHO Board of Directors

The PHO Board is soliciting nominations for two positions on the PHO Board of Directors (three-year term, November 2022 – October 2025). The Board is made up of nine members, including officer positions. Responsibilities include participating in monthly Board calls (via Zoom), annual conferences and workshops, advocating for PHO membership, hosting or facilitating a PHO webinar or roundtable, and contributing to special projects. 

Members interested in being considered are asked to submit a brief CV and a personal statement (up to 150 words) on their experience with PROMIS and interest and vision for the PHO. Please send documents by September 25 to Zan Lofgren, PHO executive director, An electronic ballot will be sent to all PHO members in early October.  

Call for Committee Members 

The PHO Board is calling for members to serve on the Education Committee and the Membership Committee.  Responsibilities include participating in meetings (via Zoom) and contributing to the project work of the committee. Members interested in serving on either the Education Committee or the Membership Committee are asked to submit a brief CV and brief statement of interest and experience. Please send documents by September 25 to Zan Lofgren, PHO executive director,

PHO Member Meeting

The PHO Annual Member Meeting will be held on Monday, October 24, at 9:00 am (Central European time) in the Clarion Congress Hotel Prague during the 8th PROMIS International Conference. 

Susan Bartlett, PhD
Secretary, PROMIS Health Organization 

Missed the PROMIS Training Workshop?

Get 8 hours of training on your own schedule  
  • On-Demand Recordings include all sessions, PDFs of presentations, and reference articles
  • Learn the fundamentals of PROMIS and how it is being used in clinical [practice and research

NAM report highlights PROMIS

A new consensus study report released by the National Academies of Sciences Engineering and Medicine (NAM) brings focus on PROMIS as a sustainable structure for common measurement. The report highlights commissioned paper, Ontologies in Patient Reported Outcomes: Conceptual issues and challenges addressed by the Patient-Reported Outcomes Measurement Information System (PROMIS), by David Cella and Ron D. Hays. The full NAM study report, Ontologies in the Behavioral Sciences: Accelerating Research and the Spread of Knowledge is available for free download. 
New Publications

Towards standardization of measuring anxiety and depression: Differential item functioning for language and Dutch reference values of PROMIS item banks
Elsman EBM, Flens G, de Beurs E, Roorda LD, Terwee CB. PLoS One. 2022 Aug 23.eCollection 2022.

Cross-cultural validity of PROMIS measures is essential for the dissemination of standardized measurements across the globe. The authors of this study evaluated the cross-cultural validity of PROMIS Anxiety and Depression item banks between the United States and the Netherlands. Differential item functioning of all items in both item banks was tested based on data from the Dutch general population and PROMIS wave 1. McFadden’s pseudo R2-change of 2% was used as the critical threshold. In both item banks, two items had DIF but with minimal impact on population level T-scores for full item banks and short forms. The authors concluded that the limited number of items with DIF and its minimal impact, enables the use of standard (US) item parameters and comparisons of scores between Dutch and US populations. 

A Patient Reported Outcome Ontology: Conceptual Issues and Challenges Addressed by the Patient-Reported Outcomes Measurement Information System® (PROMIS ®)
Cella D, Hays RD. Patient Relat Outcome Meas. 2022 Aug 15. eCollection 2022.

The authors briefly review the history of measuring perceptions of health and quality of life, followed by an examination of conceptual issues related to terminology that have led to potentially conflicting ontologies. Challenges posed by the lack of consensus on common meaning and the proliferation of measures are discussed. The ontology adopted PROMIS is suggested as a potential solution. In addition, the authors discuss issues associated with mapping the PROMIS domain framework onto other familiar ontologies and recommend a way forward for PROMIS to provide a sustainable ontological structure to enable coherent common measurement.

Evaluation of PROMIS Cognitive Function Scores and Correlates in a Clinical Sample of Older Adults
Edelen MO, Harrison JM, Rodriguez A, Weir R, Lai JS, Langer MM, Hanmer
J. Gerontol Geriatr Med. 2022 Aug 13. eCollection 2022.
Mild cognitive impairment is an early warning sign of dementia. In this study the authors assessed the utility of self-reported cognitive function using two PROMIS Cognitive Function (PROMIS-CF) items in an observational clinical sample of patients aged 65 and older (n = 16,249). The association of PROMIS-CF scores with clinical characteristics and Montreal Cognitive Assessment (MoCA) scores was evaluated, and logistic regression was used to examine predictors of 1-year decline in PROMIS-CF scores among patients with available data. PROMIS-CF scores were associated with lower (more impaired) scores for patients with cognitive impairment (CI) diagnoses, multiple comorbidities, and those taking cognitive enhancing or interfering medications. PROMIS-CF scores were also positively associated with MoCA scores. Predictors of 1-year decline in PROMIS-CF scores included CI diagnoses, use of cognitive enhancing medications, higher depression scores, and lower social role function. The authors conclude that PROMIS-CF items may be used in a brief patient-administered screening tool for CI.
Grow your network - Find collaborators for your research

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Invite a Colleague to Join
Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government. 

Membership benefits include:
  • Discount registration for the PROMIS International Conference
  • Discount registration for the PROMIS Training  Workshop 
  • PHO e-News for updates on activities and opportunities for engagement
  • Free registration for PHO webinars and access to recorded webinars
  • Free registration for virtual Roundtables
  • INFO HUB - Login for free access to recorded webinars, the member directory, update your profile, add your photo, contact colleagues.
2022 PHO Board
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Membership dues are purposely kept low to encourage participation.
PROMIS Resources
The PHO works in partnership with HealthMeasures. For more information on PROMIS and to access the measures, visit:
News to share? Questions?  Feedback?  Contact Us!

Executive Director - Lousanne "Zan" Lofgren

Meetings and Events - Karen Stenmark

Membership and Registration - Dianne Gilsenan

Corporate Outreach - Deb Whalen
Why am I receiving this newsletter?
You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below. 
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PHO e-News, September 2022 

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