A Highlight from the 2022 Conference
Building on Our Foundation,
Embracing the Future
Dave Cella, PhD
Tune in for Dr. Cella's opening plenary at the fall conference in Prague and then join him for live Q&A.
His presentation tracks the exponential growth of PROMIS to its position today as the gold standard for capturing the patient's voice in healthcare research and clinical care.
Wednesday, February 22
8 am CDT - Recorded presentation
9 am CDT - Live discussion with Dr. Cella
Click to register
Dr. Cella is the PHO President and Director, Institute for Public Health and Medicine (IPHAM) - Center for Patient-Centered Outcomes, and Professor, Dept. of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago, USA.
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Watch (or re-watch)
conference sessions
on your own time
Missed the conference?
Register for the recordings
- 3 Plenary Presentations
- 24 Oral Research Papers
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Get the training you need to take PROMIS to the next level
at your institution. Bring your team.
PROMIS in Theory - Clinical Implementation - Information Technology
Research & Practice - PROMIS 2025
June 22-23, 2023 - Chicago
Northwestern Medicine Prentice Women's Hospital
Chairs:
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T he PROTEUS Consortium is recruiting participants for its Advisory Group for Patient-Reported Outcome Implementation in Vulnerable and Underserved Populations. Specifically, they are aiming to idenitfy Advisory Group members from institutions in the United States who have expertise in addressing the needs of vulnerable and underserved populations and an interest in implementing PROs in routine oncology practice.
Application deadline is Feb. 24. For information and to apply:
PROTEUS is collaborating with Pfizer to offer a grant funding opportunity to support the use of patient-reported outcome measures (PROMs) in clinical practice to improve the monitoring and management of patients with cancer. Letters of intent are due April 28.
Learn more. |
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 Save the Date!
The NIH Toolbox® V3 Virtual Conference
Friday, March 24, 2023
- Part 1: V3 Product Introduction 11:00 a.m. – 1:00 p.m. EDT
- Part 2: V3 Technical Overview 1:30 – 3:00 p.m. EDT
Learn how the latest version of the NIH Toolbox iPad app can assist with your neurological and behavioral assessment needs. In Part 1, gain an introduction to the new V3 assessment suite, including a preview of the streamlined app interface and workflows, as well as updated support materials and resources. Hear about newly added tests, updated tests and updated norms. In part 2, obtain a technical overview of V3 norming and validation studies, changes users can expect from V2 to V3, and how to transition longitudinal studies to the new V3 iPad app.
Presenters: Elizabeth M. Dworak, PhD, MS, Richard Gershon, PhD, Emily Ho, PhD, Julie N. Hook, PhD, MBA, ABPP, Aaron Kaat, PhD, Erica LaForte, PhD.
Email for more details: Help@NIHToolbox.org
Follow NIHToolbox on: Facebook, LinkedIn, and Twitter: @NIHToolbox
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THANK YOU TO OUR 2022 SPONSORS
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Join the PHO in 2023!
Be part of the PHO's collaborative international community
PHO members work in universities, health systems, government, the pharmaceutical and technology fields, and business entities that contribute to patient-centered care. The diversity of the PHO membership is its strength.
"The colleagues and partnerships I have developed with PROMIS partners around the globe have been incredibly important and rewarding."
Susan Bartlett, PhD
McGill University, Montreal, Canada
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New Publications
Gonzalez AV, Eikenberry J, Griess C, Jaegers L, Baum CM. Evaluation of an occupational therapy reentry program: Achieving goals to support employment and community living after incarceration. Work. 2023 Jan 10. doi: 10.3233/WOR-220035. Epub ahead of print. PMID: 36641720.
This study describes the use of PROMIS measures in a non-traditional population in the criminal justice system. The authors examined the feasibility and preliminary efficacy of a 14-week occupational therapy program to support community reentry for individuals who have been incarcerated. Five PROMIS assessments were included in both the pre-intervention battery and a 12-week post-intervention battery: PROMIS-43 Profile, PROMIS Social Isolation, PROMIS Self-Efficacy for Managing Daily Activities, PROMIS Self-Efficacy for Managing Daily Activities, and PROMIS General Self-Efficacy. Pre/post-changes of 10+ points were observed for Self-Efficacy for Managing Emotions, Anxiety, and Sleep Disturbance. Overall, the program was feasible to implement, and findings from the pilot support program benefits.
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Jackson-Cowan L, Silverberg JI. Longitudinal course of cognitive impairment in patients with atopic dermatitis. Arch Dermatol Res. 2023 Jan 28. doi: 10.1007/s00403-023-02536-2. Epub ahead of print. PMID: 36708375.
The authors examined the longitudinal course of cognitive impairment in 192 patients with atopic dermatitis in an academic dermatology clinic. Cognitive impairment was assessed using the PROMIS Cognitive Function 8-item short form, with 20.85% of patients identified as having baseline impairment (T-score ≤ 45). Of patients with baseline impaired cognition, there was substantial fluctuation over time, with a complex relationship between cognition and itch severity. Of patients with baseline normal cognition, 12.57% had impaired cognition at ≥ 1 follow-up visit. Two latent classes of cognitive dysfunction were identified. Cognitive impairment was greater in Black versus White patients and those with worse depression, itch, and skin pain. This paper highlights use of a PROMIS measure to assess a potentially overlooked aspect of health status in a dermatological population and provides an example of methods and visualizations to examine longitudinal changes in multiple outcomes.
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Tam S, Zatirka T, Neslund-Dudas C, Su WT, Cannella CE, Grewal JS, Mattour AH, Tang A, Movsas B, Chang SS. Real time patient-reported outcome measures in patients with cancer: Early experience within an integrated health system. Cancer Med. 2023 Jan 20. doi: 10.1002/cam4.5635. Epub ahead of print. PMID: 36670551.
This paper describes the process of implementing PROMs in a cancer service line in an integrated metropolitan health system and presents descriptive data on early completion. PROMIS Pain Interference, Fatigue, Physical Function, and Depression computer adaptive tests were selected for collection. Measures were assigned in the electronic health record for patients to complete prior to the visit with a one-week completion window (or were completed in the clinic on a tablet). PROMIS measures were available for review by the clinician and were collected longitudinally for surveillance (see article for schedule). Severe scores were managed through clinical partnerships, including social workers/case managers managing severe depression scores and a nurse-staffed cancer symptom management clinic managing other severe scores. Implementation was staged by clinical units, with a physician champion in each unit. Completion of PROMs, particularly through the patient portal, differed by factors such as race and zip code.
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PROMIS Resources
The PHO works in partnership with HealthMeasures. For more information on PROMIS measures, visit HealthMeasures.net.
For questions on PROMIS measures, requests for permission to use the measures, translations, and to access the measures, email help@healthmeasures.net.
Free Access to PROMIS Datasets
The HealthMeasures Dataverse is a data repository that houses almost 40 de-identified datasets from studies that include PROMIS measures. Each dataset is accompanied by a brief description, codebook, and list of related publications. Researchers can complete a brief online form and download datasets for free!
Learn more at https://dataverse.harvard.edu/dataverse/HealthMeasures
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Invite a Colleague to Join
Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government.
Membership benefits include:
- Discount registration for the PROMIS International Conference
- Discount registration for the PROMIS Training Workshop
- PHO e-News for updates on activities and opportunities for engagement
- Free registration for PHO webinars and access to recorded webinars
- Free registration for virtual Roundtables
- INFO HUB - Login for free access to recorded webinars, the member directory, update your profile, add your photo, contact colleagues.
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Does your Member Profile need a refresh?
Please login to the PHO INFO HUB
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Have you paid your 2023 dues? Now is the time.
Membership dues are purposely kept low to encourage participation.
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News to share? Questions? Feedback? Contact Us!
Executive Director - Lousanne "Zan" Lofgren zan-lofgren@promishealth.org
Meetings and Events - Karen Stenmark karen-stenmark@promishealth.org
Membership and Registration - Dianne Gilsenan dianne-gilsenan@promishealth.org
Corporate Support - Deb Whalen deb-whalen@promishealth.org
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Why am I receiving this newsletter?
You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below.
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