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Important Dates
Save with Early Registration until August 31
8th Annual PROMIS International Conference in Prague
Join the Sept. 7 Roundtable: Measuring Pain
Oct. 23-24 8th Annual PROMIS International Conference in Prague
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Discover New Ideas. Share Your Research. Be Inspired.
3 Plenaries - 8 Oral Poster Sessions - 13 Roundtables
3 Pre-conference Workshops - Poster Hall
One-to-One Mentoring - Poster Walk - Welcome Reception
Connecting in Person - Priceless
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Plenary 1 - Sunday, 23 October
Building on Our Foundations, Embracing Our Future
Dave Cella, PhD
Northwestern University
Chicago, Illinois USA
Plenary 2 - Monday, 24 October
A Consensus-based National Core Set of Generic PROs and PROMs based on PROMIS
Caroline Terwee, PhD
Amsterdam University Medical Centers
Amsterdam, The Netherlands
Plenary 3 - Monday, 24 October
When the Rubber meets the Road - Methodological Challenges Ahead to Integrate PROMs into Medicine
Matthias Rose, MD, PhD
Charité –Universittsmedizin Berlin
Berlin, Germany
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The Annual PROMIS International Conference brings together researchers, clinicians, health system administrators, government and regulatory agencies, pharmaceutical and technology industries, and business entities that provide services utilizing patient outcomes to share their experiences and recent advances utilizing PROMIS measures.
We look forward to connecting with you in Prague.
Judy Baumhauer, MD, MPH Rachel Sisodia, MD Carole Tucker, PT, PhD
President Program Co-Chair Program Co-Chair
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Learn, Share and Engage at the Next Roundtable
Topic: Measuring Pain
September 7 (Wednesday), 10:00 - 11:30 am CT
Hosts: Dagmar Amtmann, PhD and Amy Cizik, PhD, MPH
Join Drs. Amtmann and Cizik for a presentation and discussion on pain measurement from both psychometric and implementation perspectives. Bring questions and share your own experience in the break-out groups.
Dagmar Amtmann, PhD, a health outcomes researcher with training in measurement, is Professor in the Department of Rehabilitation Medicine at the University of Washington in Seattle.
Amy Cizik, PhD, MPH, a health economics and outcomes researcher, is a Research Assistant Professor in the Department of Orthopaedics at the University of Utah in Salt Lake City.
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Missed the PROMIS Training Workshop?
Get 8 hours of training on your own schedule
- On-Demand Recordings include all sessions, PDFs of presentations, and reference articles
- Learn the fundamentals of PROMIS and how it is being used in clinical [practice and research
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New Publications
Ahmad FS, Jackson KL, Yount SE, et al. The development and initial validation of the PROMIS®+HF-27 and PROMIS+HF-10 profiles. ESC Heart Fail. 2022 Jul 15. https://doi: 10.1002/ehf2.14061 Epub ahead of print.
Ahmad et al. present the development and initial validation of abbreviated 27-item and 10-item versions of the original 86-item PROMIS plus heart failure (PROMIS+HF) profile. The original profile included 22 condition-specific items supplementing 64 PROMIS items. To shorten the profile, experts selected 31 candidate items from 13 domains that were reviewed by clinical users for clinical actionability and importance. Final items were selected by the research team with attention to coverage of a range of domains. The PROMIS+HF-10 allows for physical, mental, social, and overall health summary scores as well as T-scores for dyspnea, fatigue, physical function, sleep disturbance, depression, anxiety, and ability to participate in social roles. The PROMIS+HF-27 also allows for T-scores for pain interference and cognitive function. Refer to the paper for the initial validation methodology and results.
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Shahi P, Vaishnav AS, Mai E, et al. Practical answers to frequently asked questions in minimally invasive lumbar spine surgery. Spine J. 2022 Jul. https://doi: 10.1016/j.spinee.2022.07.087. Epub ahead of print.
Shahi et al. used several PROMs (including PROMIS Physical Function) administered to 366 patients preoperatively, at < 6 months, and at ≥ 6 months to answer frequently asked questions and guide shared decision making in the context of minimally invasive lumbar spine surgery. For example, to answer the question about improved activity level, they identified that 52-74% of patients achieved the minimal clinically important difference of 4 points on PROMIS PF at < 6 months, and 70-79% achieved this improvement at ≥ 6 months, depending on surgery. Refer to the paper for additional examples. Broadly, the study highlights the potential role of population-level PROM data in preoperative counseling and shared decision making, although challenges with determining clinically meaningful change must be considered.
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Caprini RM, Oberoi MK, Dejam D, et al. Effect of gender-affirming facial feminization surgery on psychosocial outcomes. Ann Surg. 2022 Jul 4. http://dx.doi.org/10.1097/SLA.0000000000005472 Epub ahead of print.
Caprini et al. used several PROMIS measures to compare psychosocial outcomes in a cohort of patients before facial feminization surgery and a second cohort of patients after facial feminization surgery. Measures included PROMIS Anxiety, Anger, Depression, Positive Affect, Meaning and Purpose, Global Health (physical and mental), Satisfaction with Sex Life, Emotional Support, Social Isolation, and Companionship. Preoperative PROMs were administered to 107 patients ≥ 30 days before surgery (median of 12.9 months), and postoperative PROMs were administered to 62 patients ≥ 10 weeks after surgery (median of 6.6 months). The postoperative cohort had improved psychosocial outcomes in 7 of 11 domains in multivariable models. This study is innovative in applying these PROMIS psychosocial measures to the transfeminine population, but findings are limited by the cross-sectional versus longitudinal design.
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Congratulations are in order!
 Ron D. Hays, PhD has been named the recipient of the 2022 Health Assessment Lab/Medical Outcomes Trust John Ware and Alvin Tarlow Career Achievement Prize in Patient-Reported Outcomes Measures (PROMs). The award will be presented on October 18 as part of ISQua’s 38th International Conference in Brisbane, Australia. Prof. Hays will be giving the opening keynote plenary session on “The Value of Patient Reports about their Health and Health Care.” He has been acknowledged as one of the most highly cited and influential scientific minds by Thomson Reuters/Clarivate Analytics in each of the last 7 years. Dr. Hays is the Distinguished Professor in the Department of General Internal Medicine and Health Services Research, at the University of California at Los Angeles.
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Invite a Colleague to Join
Members are researchers, clinicians, health policy experts, health system administrators, technology and pharmaceutical representatives, and government.
Membership benefits include:
- Discount registration for the PROMIS International Conference
- Discount registration for the PROMIS Training Workshop
- PHO e-News for updates on activities and opportunities for engagement
- Free registration for PHO webinars and access to recorded webinars
- Free registration for virtual Roundtables
- INFO HUB - Login for free access to recorded webinars, the member directory, update your profile, add your photo, contact colleagues.
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Does your Member Profile need a refresh?
Please login to the PHO INFO HUB
- Update your contact information
- Add your photo
- Complete your profile
- Pay your dues
- View the member directory
- Connect with fellow members
- Access recorded webinars
Have you paid your 2022 dues? Now is the time.
Membership dues are purposely kept low to encourage participation.
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PROMIS Resources
The PHO works in partnership with HealthMeasures. For more information on PROMIS and to access the measures, visit: healthmeasures.net
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News to share? Questions? Feedback? Contact Us!
Executive Director - Lousanne "Zan" Lofgren zan-lofgren@promishealth.org
Meetings and Events - Karen Stenmark karen-stenmark@promishealth.org
Membership and Registration - Dianne Gilsenan dianne-gilsenan@promishealth.org
Corporate Outreach - Deb Whalen deb-whalen@promishealth.org
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Why am I receiving this newsletter?
You are receiving this newsletter because you belong to the HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, and NIH Toolbox) community. HealthMeasures and the PROMIS Health Organization work as partners to provide education on patient-reported outcomes and to advance measurement science. HealthMeasures operates under a cost-recovery business model with no profit motivation. The PROMIS Health Organization is a 501(c)3 non-profit organization. To discontinue receiving emails from the PROMIS Health Organization, please use the "unsubscribe from this list" link below.
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