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It's time to register for Prague 2022
 
Important Dates

Save with Early Registration until August 31
8th Annual PROMIS International Conference in Prague


Join the Sept. 7 Roundtable: Measuring Pain

Oct. 23-24  8th Annual PROMIS International Conference in Prague
Discover New Ideas. Share Your Research. Be Inspired.

Join us in beautiful historic Prague
Register by August 31 and Save
3 Plenaries - 8 Oral Poster Sessions - 13 Roundtables
3 Pre-conference Workshops - Poster Hall 
One-to-One Mentoring - Poster Walk - Welcome Reception 
Connecting in Person - Priceless
 
Plenary 1 - Sunday, 23 October


Building on Our Foundations, Embracing Our Future

Dave Cella, PhD
Northwestern University
Chicago, Illinois USA




Plenary 2 - Monday, 24 October

Caroline Terwee

A Consensus-based National Core Set of Generic PROs and PROMs based on PROMIS

Caroline Terwee, PhD
Amsterdam University Medical Centers
Amsterdam, The Netherlands




Plenary 3 - Monday, 24 October
 
Matthias Rose
When the Rubber meets the Road - Methodological Challenges Ahead to Integrate PROMs into Medicine

Matthias Rose, MD, PhD
Charité –Universittsmedizin Berlin
Berlin, Germany


 
The Annual PROMIS International Conference brings together researchers, clinicians, health system administrators, government and regulatory agencies, pharmaceutical and technology industries, and business entities that provide services utilizing patient outcomes to share their experiences and recent advances utilizing PROMIS measures.

We look forward to connecting with you in Prague.

Judy Baumhauer, MD, MPH        Rachel Sisodia, MD        Carole Tucker, PT, PhD    
     President                           Program Co-Chair              Program Co-Chair
Learn, Share and Engage at the Next Roundtable 

Topic:  Measuring Pain
September 7 (Wednesday), 10:00 - 11:30 am CT
Hosts: Dagmar Amtmann, PhD and Amy Cizik, PhD, MPH
 
Join Drs. Amtmann and Cizik for a presentation and discussion on pain measurement from both psychometric and implementation perspectives. Bring questions and share your own experience in the break-out groups. 


Dagmar Amtmann, PhD, a health outcomes researcher with training in measurement, is 
Professor in the Department of Rehabilitation Medicine at the University of Washington in Seattle. 



 Amy Cizik, PhD, MPH, a health economics and outcomes researcher, is a Research Assistant Professor in the Department of Orthopaedics at the University of Utah in Salt Lake City.                                        

Missed the PROMIS Training Workshop?

Get 8 hours of training on your own schedule  
  • On-Demand Recordings include all sessions, PDFs of presentations, and reference articles
     
  • Learn the fundamentals of PROMIS and how it is being used in clinical [practice and research
New Publications

Ahmad FS, Jackson KL, Yount SE, et al. The development and initial validation of the PROMIS®+HF-27 and PROMIS+HF-10 profiles. ESC Heart Fail. 2022 Jul 15. https://doi: 10.1002/ehf2.14061 Epub ahead of print.
 
Ahmad et al. present the development and initial validation of abbreviated 27-item and 10-item versions of the original 86-item PROMIS plus heart failure (PROMIS+HF) profile. The original profile included 22 condition-specific items supplementing 64 PROMIS items. To shorten the profile, experts selected 31 candidate items from 13 domains that were reviewed by clinical users for clinical actionability and importance. Final items were selected by the research team with attention to coverage of a range of domains. The PROMIS+HF-10 allows for physical, mental, social, and overall health summary scores as well as T-scores for dyspnea, fatigue, physical function, sleep disturbance, depression, anxiety, and ability to participate in social roles. The PROMIS+HF-27 also allows for T-scores for pain interference and cognitive function. Refer to the paper for the initial validation methodology and results.
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Shahi P, Vaishnav AS, Mai E, et al. Practical answers to frequently asked questions in minimally invasive lumbar spine surgery. Spine J. 2022 Jul. https://doi: 10.1016/j.spinee.2022.07.087. Epub ahead of print.
 
Shahi et al. used several PROMs (including PROMIS Physical Function) administered to 366 patients preoperatively, at < 6 months, and at ≥ 6 months to answer frequently asked questions and guide shared decision making in the context of minimally invasive lumbar spine surgery. For example, to answer the question about improved activity level, they identified that 52-74% of patients achieved the minimal clinically important difference of 4 points on PROMIS PF at < 6 months, and 70-79% achieved this improvement at ≥ 6 months, depending on surgery. Refer to the paper for additional examples. Broadly, the study highlights the potential role of population-level PROM data in preoperative counseling and shared decision making, although challenges with determining clinically meaningful change must be considered.
--------------- 
 
Caprini RM, Oberoi MK, Dejam D, et al. Effect of gender-affirming facial feminization surgery on psychosocial outcomes. Ann Surg. 2022 Jul 4. http://dx.doi.org/10.1097/SLA.0000000000005472 Epub ahead of print. 
 
Caprini et al. used several PROMIS measures to compare psychosocial outcomes in a cohort of patients before facial feminization surgery and a second cohort of patients after facial feminization surgery. Measures included PROMIS Anxiety, Anger, Depression, Positive Affect, Meaning and Purpose, Global Health (physical and mental), Satisfaction with Sex Life, Emotional Support, Social Isolation, and Companionship. Preoperative PROMs were administered to 107 patients ≥ 30 days before surgery (median of 12.9 months), and postoperative PROMs were administered to 62 patients ≥ 10 weeks after surgery (median of 6.6 months). The postoperative cohort had improved psychosocial outcomes in 7 of 11 domains in multivariable models. This study is innovative in applying these PROMIS psychosocial measures to the transfeminine population, but findings are limited by the cross-sectional versus longitudinal design.
Congratulations are in order!

Ron D. Hays, PhD has been named the recipient of the 2022 Health Assessment Lab/Medical Outcomes Trust John Ware and Alvin Tarlow Career Achievement Prize in Patient-Reported Outcomes Measures (PROMs). The award will be presented on October 18 as part of ISQua’s 38th International Conference in Brisbane, Australia.  Prof. Hays will be giving the opening keynote plenary session on “The Value of Patient Reports about their Health and Health Care.” He has been acknowledged as one of the most highly cited and influential scientific minds by Thomson Reuters/Clarivate Analytics in each of the last 7 years. Dr. Hays is the Distinguished Professor in the Department of General Internal Medicine and Health Services Research, at the University of California at Los Angeles.    
 
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The PHO works in partnership with HealthMeasures. For more information on PROMIS and to access the measures, visit: healthmeasures.net
 
News to share? Questions?  Feedback?  Contact Us!

Executive Director - Lousanne "Zan" Lofgren zan-lofgren@promishealth.org

Meetings and Events - Karen Stenmark karen-stenmark@promishealth.org

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Corporate Outreach  - Deb Whalen deb-whalen@promishealth.org
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PHO e-News, August 2022 

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