Dear IPPOSI members,
Welcome to the July newsletter, I hope you are enjoying the summer! Things continue apace here at IPPOSI, on July 3rd
we co-organised the launch of the much anticipated National Rare Disease Plan for Ireland 2014-2018. The launch event in the College of Physicians was extremely well attended so thank you to everyone who came on the day, but particular thanks must go to all those people who have worked so hard for so many years to get the Plan written and published.
The work doesn’t end there. We have to ensure that the provisions of the plan, particularly the National Office for Rare Diseases, are included in the HSE’s Service Plan for 2015. For now however, congratulations to everyone who helped to make this happen. You can see the plan here
and media coverage of the Plan’s publications here
This month IPPOSI is also very pleased to publish our own Outcomes Report
arising from the Annual Roundtable Meeting with the Secretary General of the Department of Health. This year the meeting focused on Health Information, and the contributions of the speakers, and the discussions they triggered have, we hope, been captured in the Outcomes Report. Once again thank you to all of the people who took part.
Elsewhere, and as a member of the HIQA Research Ethics Advisory Group, IPPOSI attended a meeting in Dublin Castle’s George’s Hall titled: ‘Information Session on the Health Information Bill - Research Ethics Approval Framework’.
Looking to the months ahead, we already have a good response for IPPOSI AGM and EUPATI National Platform Meeting which will take place in Dublin Castle on Tuesday the 16th
of September 2014. If you haven’t already registered for the event, you can do so by going to Eventbrite online registration here
I am also pleased to inform you that IPPOSI and UCD ARCH will be hosting a conference called ‘Connected Health & Me: The Patient Perspective’ at the end of November 2014. As you may be aware, we have already issued a ‘Call to members’ about the ‘Health hack’ that will take place during the conference, so you can find more information about that here
. In the coming days IPPOSI will circulate an official ‘save the date’ notice, including registration details, once final details for the day have been confirmed.
Finally, IPPOSI has launched our new-look website so be sure to drop by www.ipposi.ie
. The site will shortly include an updating HTA (Health Technology Assessment) box that links to the NCPE’s online feed. Hopefully that will prove useful to members in the future.
Enjoy the rest of the summer and I look forward to seeing you soon.