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See below for a daily digest of the latest SMA columns.

Ella and Her Brother Learn a Lesson

Mar 18, 2020 09:00 am | Michael Casten



lessonThe world is holding its collective breath as COVID-19 makes its way across the globe. My daughter Ella has SMA. Her respiratory system is particularly fragile and compromised due to her disease. A simple cold can wreak havoc on her, landing her in the hospital if things progress too quickly. This once happened when she […]

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Should I Panic About the Coronavirus?

Mar 17, 2020 09:00 am | Kevin Schaefer



coronavirusAlmost every aspect of my life with SMA comes with a risk factor. Whether I’m traveling out of town or going to a movie with friends in the wintertime, I’m putting my already compromised immune and respiratory systems at risk. My health has improved significantly in recent years, but the dangers of the outside world […]

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Should I Bring Up My Disability While Volunteering?

Mar 13, 2020 03:00 pm | Halsey Blocher



For many years, I’ve been involved in a fantastic local organization called Turnstone that serves the disabled community with a variety of services. I’ve been blessed to benefit from Turnstone’s services since I was 3, both as a client in therapy and in other programs. In recent years, I have transitioned into volunteer roles, including […]

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Chronic Ear Infections Put a Damper on Life

Mar 13, 2020 09:00 am | Alyssa Silva



zebraAnother day, another opportunity to go through a box of tissues to wipe the drainage coming out of my ears. Is that how the saying goes? That may have come across a bit grotesque, but unfortunately, it is my current reality. In my last column, I wrote about how my medical complexities earned me the […]

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A Mountain Is a Mountain, no Matter How Small

Mar 12, 2020 03:00 pm | Katie Napiwocki



snowy mountains, importance of adventureI’ve come down with a fever.  As I sit on my outdoor patio, the tall angle of late February sun kisses my cheeks and warms my bones. From one bare tree branch to another, chickadees chatter amid treetop frolic. Surrounding me along all borders of the patio is a mountain range of snow, piled high […]

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The Time I Would Have Given Back

Mar 11, 2020 03:00 pm | Helen Baldwin



timeIt’s daylight saving time and we have given back the extra hour we snagged in the fall. I don’t like giving time back. Usually. Ahhh … time. It’s a given that when you’re having fun, time whizzes by. My six weeks studying in Europe after high school? Zoom, zoom. Almost 50 years of marriage? Blur. […]

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