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See below for a Wednesday morning overview of recent SMA articles.
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SMA News Today Columns

The Web's Daily Resource for Spinal Muscular Atrophy News

In the 02/26/2020 edition:
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Excerpts:

When You Have SMA, Every Day Is Rare

rareFeb. 29 is Rare Disease Day. On that day people are encouraged to spread awareness about a multitude of rare diseases and conditions, from SMA to cystic fibrosis to Charcot-Marie-Tooth disease. The umbrella of disease communities is vast, but the word “rare” unites us all.  In the world of SMA, every day is rare.  I […]

The post When You Have SMA, Every Day Is Rare appeared first on SMA News Today.


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The Stories I Share Make Me Rare

rare, Rare Disease DayI’ve been thinking about Rare Disease Day on Feb. 29 for weeks. I’ve been trying to figure out how exactly I’m rare, and in what ways, and how I might address all the weird, rare, exhilaratingly absurd parts of me that make me … me. I could write about surgery. Birthdays in the hospital. Pneumonia […]

The post The Stories I Share Make Me Rare appeared first on SMA News Today.


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Living at Home as a Young Adult with SMA

living at homePeople look at me questioningly upon realizing that I live with my parents at the age of 22. Moving out is often considered a rite of passage. People expect me to do the same, even though many young adults enjoy living at home with their families. I don’t know what runs through people’s minds when […]

The post Living at Home as a Young Adult with SMA appeared first on SMA News Today.


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