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See below for a daily digest of the latest Parkninsons forum topics!

Parkinsons News Today Weekly Forum Digest

Join the discussion! See below for the latest topics and conversations about Parkinsons taking place in our forums. Your voice is needed!

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Have you tried CBD oil?

Sep 16, 2020 02:20 pm | Mary Beth Skylis



Replies: 9

CBD oil is Federally legally across the United States if it is manufactured in an appropriate manner. As long as THC levels are below 0.03, the government supports the distribution of it. My Dad tried a few different types of CBD oil to see if it would help with issues like muscle stiffness and anxiety. He’s not convinced that it had much of an impact. Have you tired CBD oil? Did you notice a difference? Was there a specific kind of tincture that you used?

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Ropinirole cause of shortness of breath, anxiety-like symptoms between med dose

Sep 16, 2020 12:27 pm | Gail Brightbill



Replies: 1

My new neurologist took me off Rasagiline after a year’s use and prescribed Ropinirole. I also take Sinemet I immediately began to have extreme anxiety reactions when the two meds began to wear off after 2-3 hours. Has anyone else had this reaction?

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Zhittya Genesis Medicine, Inc. FGF-1, Dan Montano CEO

Sep 16, 2020 09:04 am | Steve Lester



Replies: 0

Lately I’ve been exchanging emails and phone calls with Dan Montano, CEO of Zhittya Genesis Medicine, Inc. Googled information on him is all over the map. I’m considering investing in this miracle drug his company offers which he seems to truly believe will cure PD following the results of animal studies. Human studies should begin in a few months, he says. If you know anything about him or his company, I’m all ears.

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What’s the most effective exercise routine for PD?

Sep 16, 2020 05:45 am | Mary Beth Skylis



Replies: 10

While exercise is shown to have positive impacts on everybody, exercise types are not created equal. Cardiovascular exercises, for instance, target different parts of the body than strength training. When it comes to Parkinson’s, I wonder if there are some exercises that would be particularly beneficial to patients. In your own experience, what is the most effective exercise routine for PD? Do you find that certain styles of exercise help more than others?

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Do you have any questions about mannitol?

Sep 16, 2020 03:45 am | Ally



Replies: 16

Do you have any questions about mannitol, the artificial sweetener that could be a game changer for people with Parkinson’s? (You can read more about mannitol here.)

On Tuesday, September 1 at 11am ET, we’re doing an Instagram Live with three of the people featured in the documentary about mannitol, My Disease, Our Revolution. We’ll be talking to Daniel Segal, PhD,who has done pre-clinical research on mannitol; Danny Vesely, a patient advocate for mannitol; and Amir Sadeh, the CEO and co-founder of CliniCrowd, which is trying to bring mannitol to the masses.

If you have any questions or comments for Daniel, Danny and/or Amir, be sure to leave them below so we can ask them in our chat! You can also follow @parkinsonsnews on Instagram and ask your questions live during the interview.

  • This topic was modified 2 weeks, 5 days ago by Ally.
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When did you first suspect that you had Parkinsons?

Sep 15, 2020 10:47 pm | Mary Beth Skylis



Replies: 4

Parkinsons can be really difficult to diagnose because its symptoms can be misinterpreted. And sometimes PD symptoms look similar to symptoms from other diseases. When did you first start to suspect that you had Parkinsons? Did you know before your Doctor knew?

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Do you have theories about why you have Parkinsons?

Sep 15, 2020 02:10 pm | Mary Beth Skylis



Replies: 15

Science still can’t exactly say why some people develop Parkinsons and others don’t. But we’re starting to notice trends. In some cases, environmental factors seem to play a part in the development of the disease. In others, it seems like there could be a genetic predisposition (although there’s some debate about this idea). Do you have any theories about why you have Parkinsons?

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