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News from the CLDR

Data Available for Analysis

Data from the Early Intervention Colorado Participant Characteristics, Service Use, and Patient-Reported Outcomes (PI - Mary Khetani, ScD, OTR/L) study is now available for secondary analysis. This study examines the adequacy of early intervention services as well as pilots the use of two electronic patient-reported outcomes. A previously released dataset, Early Intervention Colorado 2014-2016 (PI – Beth McManus, PT, MPH, ScD), includes information from discharged families on relevant patient characteristics, service use, and provider-reported outcomes.
These datasets received support for archiving and curation activities via CLDR Data Sharing and Archiving awards. Funding is still available for those interested in archiving research data. PI’s should contact the CLDR (CLDR.info@utmb.edu) for more information and consultation.

Pilot Awards Selected

The CLDR awarded six Category 1 Large Data Pilot awards:
  • Navneet Kaur Baidwan, PhD, University of Alabama at Birmingham
  • Pamela Bosch, PhD, DPT, Northern Arizona University
  • Sara Knox, PT, PhD, DPT, MGH Institute of Health Professions
  • Tolu Oyesanya, PhD, RN, Duke University
  • Eric Roseen, DC, MSc, Boston Medical Center
  • Cathy Schmidt, PT, PhD, Assistant Professor, MGH Institute of Health Professions and Shweta Gore, PhD, DPT, (Co-PI), Assistant Professor, MGH Institute of Health Professions
Congratulations to this year’s awardees. Visit the CLDR Pilot page to learn more about current and past pilot projects.
The CLDR awarded two Category 2 Data Sharing and Archiving awards:
  • Linda Tickle-Degnen, PhD, OT, FAOTA (PI), Tufts University
    The Social Self-Management of Parkinson’s Disease Study, a mixed-method prospective cohort study of how people with Parkinson’s disease and their primary caregiver naturalistically manage chronic disease, wellness, and social life in their home and community.
  • Jaynie Yang PT, PhD (PI), University of Alberta
    Retraining walking over ground in a powered exoskeleton after spinal cord injury, a prospective cohort study using the ReWalk powered exoskeleton to train people with chronic, severe spinal cord injury to walk.
These studies will be archived and made available through the Archive of Data on Disability to Enable Policy and research (ADDEP). Those interested in receiving support to archive their own research data should visit the CLDR Data Sharing and Archiving page to learn more.

Visiting Scholars

The CLDR recently hosted two Visiting Scholars:
  • July 22, 2019 - Jason Falvey, PT, DPT, PhD, Post-Doctoral Fellow, Yale University School of Medicine, Rehabilitation and Hospital Readmissions: A Call to Action
  • July 29, 2019 – Indrakshi Roy, PhD, Wayne State University, Impact of rehabilitation latency on health outcomes of hip fracture patients and patients who have suffered with ischemic stroke
The Visiting Scholar program is a unique experience in which awardees receive training and mentoring on their own rehabilitation related research project. Visit the CLDR Visiting Scholar page to learn more and apply.

Recent Publications

The CLDR supported two new publications:

Announcements

National Quality Forum: Electronic Health Records: Data Quality Best Practices for Increased Scientific Acceptability This project aims to explore the challenges and opportunities to improve EHR data quality so that it can be widely used as a reliable source for eCQMs to support quality reporting, quality improvement, and reduce unnecessary administrative burden. Get Involved
 
 

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CLDR is part of the Medical Rehabilitation Research Resource Network (MR3 Network), funded by The National Institute of Child Health and Human Development (NICHD), through the National Center for Medical Rehabilitation Research (NCMRR), the National Institute for Neurological Disorders and Stroke (NINDS), and the National Institute of Biomedical Imaging and Bioengineering (NIBIB). (P2CHD065702)
Copyright © 2019 UTMB Rehabilitation Sciences, All rights reserved.


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