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Bringing all voices to the intellectual/developmental disabilities debate.
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Hello everyone,
 
We are delighted to share our Homes For Life planned community survey “summary” results with FSU members and others who responded. One of the most important questions was:
 
Can the future applicant afford to private pay for needed supports? 
Yes – 71 (65%) 
No 
– 38 (35%)
Rent and utilities are anticipated to be affordable for a person with SSI or SSDI income. Delaware’s current interpretation of the Federal CMS regulations may not support a planned community. Therefore, HCBS waiver funds may not be able to be used to access support services. 

Note: the cost for Direct Care is individualized and based on each person’s Person-Centered-Plan (PCP). As we have pointed out, at the present time, even if Homes For Life can build the community debt free, the cost for support staff will be private pay.

Continue below for more results, and be sure to read until the end for important educational resources. 
Homes For Life Planned Community Survey Results
Respondents were not required to answer all of the questions. 
NUMBER OF RESPONDENTS: 116
Men – 75 (65%)
Women – 41 (35%)

How old is the future resident?

21-30 – 55
31-40 – 24
41-50 – 8
51-60 – 2
61-65 – 2

Have you previously lived on your own?

Yes – 6
No – 103

(7 people skipped the question)

When would you like to live in the community?

As soon as possible – 52
2 years – 14
5 years – 36
10 years – 14
(7 people skipped the question)

Where do you currently live?

With family – 85 (78%)
Group home – 20 (18%)
In own apartment 2 (1.9%)
Other – 2  (1.9%)

Eating – 9 (8%)
Managing Money 104 (93%)
Transportation (public or private)  95 (85%)
Grocery Shopping 93 (83%)
Doing Laundry 66 (59%)
Organizing daily schedule – 64 (57%)
Personal Hygiene “Reminders” – 64 (57%)
Taking Medications – 62 (55%)
Stranger Danger – 56 (50%)
Communications – 51 (46%)


Household Chores / Keeping Room Clean – 56 (50%)
Basic Meal Preparation (cannot use microwave) – 48 (43%)
Showering / Bathing – 29 (26%)
Managing Behaviors / Anger Issues – 28 (25%)
Dressing – 21 (19%)
Toileting – 20 (18%)
Other (please specify) – 16 (14%)

Cannot be left alone – 36 (32%)
1 to 3 hours – 21 (19%)
4 to 6 hours – 18 (16%)
7 to 12 hours – 22 (20%)
13 to 16 hours – 9 (8%)
Several Days – 7 (6%)
While Sleeping – 13 (12%)

What is your income source?

Employment – 47 (58%)
SSI – 48 (59%)
SSDI – 35 (48%)
Other – 15 (18%)

Do you receive DDDS Services? 

Yes – 77 (71%)
Hope to in the future – 32 (29%)

(7 skipped this question)

No Roommates  31 (30%)
1-2 Roommates with I/DD  81 (77%)
Shared Living with Neurotypical Roommate  42 (40%)
Smart Home Technology 38 (36%) 
Sensory-friendly Design 22 (21%)

Nutrition & Exercise (Grocery shopping, Individualized Nutrition Planning, and Exercise Groups) – 104 (93%)
Apartment Life Skills (Resident activities and services, general living skills) – 102 (91%)
Adult Life & Skills (Community involvement programs, enrichment classes & programs, educational programs) – 99 (88%)
Health & Wellness (Medical Appointments, Managing Health Needs) – 97 (87%)
Personal Finance Management – 92 (82%)
Meals (Breakfast & Dinner) – 87 (78%)
Other – 17 (15%)

We encourage all families and members of the I/DD community to read the following two blogs (links below), which, in our opinion, address the CMS Federal regulations and their impact on all states going forward. The author, Jill Escher, is the mother of two children with profound autism, the President of the San Francisco Autism Society and a landlord to low-income people. Her focus is on the California crisis, but her interpretation of the Federal regulations applies to all of us.

Blog 1: The Federal Government's Quiet War Against Adults with Autism
Blog 2: You Can Choose Where You Want to Live ... Unless You Have Autism

There have been success stories as we have seen in the four Florida communities. It is imperative that we commit to working with our Delaware Governor and legislators to support our efforts. Please feel free to share this email and/or respond with any questions or comments. Thank you for your hard work and commitment to the important issues impacting citizens with I/DD.

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Homes For Life · 1106 Berkeley Road · Wilmington, DE 19807 · USA

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