We are delighted to share our Homes For Life planned community survey “summary” results with FSU members and others who responded. One of the most important questions was:
Can the future applicant afford to private pay for needed supports? Yes – 71 (65%)
No – 38 (35%)
Rent and utilities are anticipated to be affordable for a person with SSI or SSDI income. Delaware’s current interpretation of the Federal CMS regulations may not support a planned community. Therefore, HCBS waiver funds may not be able to be used to access support services.
Note: the cost for Direct Care is individualized and based on each person’s Person-Centered-Plan (PCP). As we have pointed out, at the present time, even if Homes For Life can build the community debt free, the cost for support staff will be private pay.
Continue below for more results, and be sure to read until the end for important educational resources.
Homes For Life Planned Community Survey Results
Respondents were not required to answer all of the questions.
NUMBER OF RESPONDENTS: 116 Men – 75 (65%) Women – 41 (35%)
No Roommates – 31 (30%) 1-2 Roommates with I/DD –81 (77%) Shared Living with Neurotypical Roommate – 42 (40%) Smart Home Technology – 38 (36%) Sensory-friendly Design– 22 (21%)
Nutrition & Exercise (Grocery shopping, Individualized Nutrition Planning, and Exercise Groups) – 104 (93%) Apartment Life Skills (Resident activities and services, general living skills) – 102 (91%) Adult Life & Skills (Community involvement programs, enrichment classes & programs, educational programs) – 99 (88%) Health & Wellness (Medical Appointments, Managing Health Needs) – 97 (87%) Personal Finance Management – 92 (82%) Meals (Breakfast & Dinner) – 87 (78%) Other – 17 (15%)
We encourage all families and members of the I/DD community to read the following two blogs (links below), which, in our opinion, address the CMS Federal regulations and their impact on all states going forward. The author, Jill Escher, is the mother of two children with profound autism, the President of the San Francisco Autism Society and a landlord to low-income people. Her focus is on the California crisis, but her interpretation of the Federal regulations applies to all of us.
There have been success stories as we have seen in the four Florida communities. It is imperative that we commit to working with our Delaware Governor and legislators to support our efforts. Please feel free to share this email and/or respond with any questions or comments. Thank you for your hard work and commitment to the important issues impacting citizens with I/DD.