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See below for a weekly digest of the latest Cystic Fibrosis news:

The Burden of Care in the Life of a CF Patient

Jan 28, 2019 09:00 am | Tré LaRosa



burdenA couple of months ago, I did back-of-the-envelope calculations on basic CF stats. Here’s what I asked: In a year, how much time do I spend doing treatments? How many pills do I take? As I wrote last week, the spectrum of CF presentation is about as diverse as the number of patients in the […]

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Personalized Nutrition Programs May Help Improve Outcomes for CF Patients, Survey Suggests

Jan 28, 2019 07:00 am | Alice Melão



nutrition survey, CFNew personalized strategies that can address the nutritional needs of cystic fibrosis patients may provide the best care and improve patient outcomes, a study suggests. The study, “A survey identifying nutritional needs in a contemporary adult cystic fibrosis cohort,” was published in the journal BMC Nutrition. CF is mainly known for its progressive respiratory symptoms. […]

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CF Foundation Gives $4.5M to Expedite Talee Bio’s Development of Two Gene Therapy Candidates

Jan 25, 2019 07:00 am | Iqra Mumal



CFF, gene therapy fundingThe Cystic Fibrosis Foundation (CFF) will fund the preclinical development of two gene therapy candidates, Talee Bio’s TL-101 and TL-102, for the treatment of cystic fibrosis (CF), the company announced. Talee will receive up to $4.5 million from CFF to help accelerate the development of both these gene therapies for all CF patients, particularly for those […]

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Making Dreams Come True in Uncertain Times

Jan 24, 2019 09:00 am | Elly Aylwin-Foster



dreamsLast week, I introduced this column to share my experiences while working with cystic fibrosis (CF): the highs, the lows, the mid-meeting IVs — those kinds of things. In this column, I want to focus on the future; specifically, the dreams that I have of my future. Big dreams got me to where I am. […]

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European Research Team Granted €6.8M to Develop Non-viral Gene Therapy System

Jan 24, 2019 07:00 am | Alice Melão



ENDOSCAPE project Horizon 2020The Horizon 2020 research and innovation program of the European Union granted €6.8 million (approximately $7.7 million) to an international research team for the development of non-viral gene delivery technology. This new gene therapy strategy has the potential to improve the health of patients with genetic diseases worldwide, including those with cystic fibrosis, Huntington’s disease, and […]

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