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See below for a weekly digest of the latest Cystic Fibrosis news:

Link Found Between P. aeruginosa Infection and Disease Severity in CF Patients, Study Reports

Jan 30, 2019 07:00 am | Santiago Gisler



Pseudomonas aeruginosaPatients with cystic fibrosis (CF) who have never been exposed to the Pseudomonas aeruginosa bacterium have a  milder form of the disease, a retrospective study based on registry data suggests. The study, “Clinical and microbiological characteristics of cystic fibrosis adults never colonized by Pseudomonas aeruginosa: Analysis of the French CF registry,” was published in the journal Plos One. […]

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Children Teach Us How to Love People with Health Conditions and Disabilities

Jan 29, 2019 09:00 am | Brad Dell



childrenA running joke among my friends is that “Brad hates kids.” Maybe I did. I could blame that on my obsession with having adult friends as a teen — in comparison to them, children seemed so naive. So yeah, people would always find me rolling my eyes at kids or saying their jokes are stupid. The […]

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Toddlers Age 1-2 With CF Can Now Be Treated With Kalydeco in Canada

Jan 29, 2019 07:00 am | Alice Melão



Kalydeco Toddlers CanadaHealth Canada has approved the use of Kalydeco (ivacaftor) in toddlers age 1-2 years with certain genetic mutations that prevent the correct functioning of the CFTR protein, the therapy’s developer announced. With a pill taken twice a day, Kalydeco, by Vertex Pharmaceuticals, makes it possible to resolve the underlying cause of cystic fibrosis (CF) in people with […]

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