Those Who Care for Rare Disease Patients Face Burnout, First US Survey Shows
Mar 02, 2018 07:30 am | Patricia Inacio, PhD
Family and friends caring for people with rare diseases face emotional, financial, physical, and social burnout, partly because outside sources of support are limited, the first-of-its-kind U.S. survey shows. Global Genes and the National Alliance for Caregiving released the findings, which Greenwald & Associates conducted. It covered 1,406 family members caring for adults or children with a rare disease. […]
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