|
|
|
|
Monthly Newsletter
February 2017, Issue #39
|
|
|
Beyond the Bloodspot: Education and Engagement Summit
Summit Moved to June 2017
Baby's First Test has changed the date of its education and engagement summit. The two-day education and engagement summit on newborn screening will now take place on June 5 - 6, 2017 in Washington, DC. Goals for the summit and a draft agenda will be available in March. If you have questions about the summit, please email Jackie Seisman at jackie@babysfirsttest.org
|
|
|
Resource of the Month
Critical Congenital Heart Disease: Where We Are & Where We're Going
|
|
|
Community Corner
Genetic Alliance 30th Anniversary Conference & Celebration
Join Genetic Alliance on March 9-10, 2017 for its 30th Anniversary Conference and Celebration, an opportunity to celebrate the successes, examine the failures, and most importantly, plan for the future. Always keeping individuals and families at the center, Genetic Alliance will enable cross-disciplinary, multi-stakeholder teams to co-create a vision worth striving for as well as more concrete solutions to transforming health. Register and learn more here.
2017 APHL Newborn Screening and Genetic Testing Symposium Call for Abstracts Now Open
The Association for Public Health Laboratories (APHL) is now accepting abstracts for the 2017 Newborn Screening and Genetic Testing Symposium on September 10-13, 2017 in New Orleans, LA. All submissions must be completed online. Full details on this process are contained in the Call for Abstracts. Only abstracts submitted online will be considered. The deadline for abstract submission is March 31, 2017.
Sickle Cell Disease and Other Hemoglobinopathies: Newborn Screening and Beyond
The Alabama Department of Public Health is hosting a satellite conference and live webcast on Sickle Cell Disease and other Hemoglobinopathies on March 24, 2017 at 1 PM CT. To view the conference flyer, click here. To register, click here.
Rare Disease Day is February 28th
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. To learn how you can get involved, click here.
|
|
|
Stay Connected
Job Opportunities
Engagement and Outreach Manager
Genetic Alliance
Washington, DC - To learn more, click here.
Freelance Writer, Engagement and Outreach
Genetic Alliance
Washington, DC - To learn more, click here.
Specialist, Newborn Screening and Genetics
The Association of Public Health Laboratories
Maryland - To learn more, click here.
Laboratory Staff Scientist
The New England Newborn Screening Program
Massachusetts - To learn more, click here.
Lab Supervisor
The New England Newborn Screening Program
Massachusetts - To learn more, click here.
Recorded Webinars
Critical Congenital Heart Disease: Where We Are & Where We're Going
Baby's First Test
February 24, 2017
To watch, click here.
Upcoming Webinars
Cystic Fibrosis Timeliness QI Webinar
Association of Public Health Laboratories (APHL)
March 8, 2017 at 11:00 AM - 12:00 PM MT
For more information, click here.
Short Term Follow Up Webinar
Association of Public Health Laboratories (APHL)
March 13, 2017 at 3:00 PM - 4:00 PM ET
For more information, click here.
Critical Congenital Heart Disease Technical Assistance Webinar
Association of Public Health Laboratories (APHL)
March 24, 2017 at 1:00 PM - 2:00 PM ET
For more information, click here.
Upcoming Meetings
AMCHP Annual Conference 2017
Association of Maternal & Child Health Programs (AMCHP)
Saturday, March 4 - Tuesday, March 7, 2017
Kansas City, MO
For more information, click here.
Genetic Alliance 30th Anniversary Conference & Celebration
Genetic Alliance
Thursday, March 9 - Friday, March 10, 2017
Washington, DC
For more information, click here.
ACMG Annual Clinical Genetics Meeting 2017
American College of Medical Genetics and Genomics (ACMG)
Tuesday, March 21 - Saturday, March 25
Phoenix, AZ
For more information, click here.
|
|
|
|
|
|
Genetics Clinic Expands, Offers Service Unique to Area
|
|
|
|
|
|
Maternal Health Care Is Disappearing in Rural America
|
|
|
|
|
|
ACOG: Offer All Women Pre-Pregnancy Genetic Screening
|
|
|
|
|
|
|
|
